Goodbye Milrinone

The best news of the day is that we are officially OFF Milrinone completely!  We turned it off yesterday morning and he has done just fine.  He continues to gain weight and has more energy than he had coming here thirteen weeks ago.  I can't believe we have been here 13 weeks ... 91 days to be exact!  

 

They are doing his echo today and we started him on Enalapril (heart failure med). We added that to the Lasix, Aldactone, Digoxin, Prevacid, Periactin, Prograf, Myfortin, Iron, Plavix, Asprin, Coumadin and Epogen injections.  Owen is still listed status 1A (by exception).

 

Tomorrow afternoon we have a meeting scheduled with the team.  He has labs in the morning and we'll have all the data from today's Echo and EKG to make the best decision on how to move forward.  We would appreciate prayers and good thoughts as we have big decisions to make. 

 

Owen has been keeping up with his school work.  We started multiplication and he already has so many facts memorized. he is a quick learner. We explored the globe, continents, oceans, and are working on countries now.  My parents and Gigi sent him a microscope with tons of slides for science and he loves it!  I'll have the nurse help me make some blood slides tomorrow during labs. So cool!

Owen has a tooth hanging by a thread so he's deciding which nurse is allowed to pull it.  He is making bank on the tooth fairy this week.

Back home...

Kam is busy with school.  Carson is busy with work.  Logi has a tummy bug and isn't feeling great, but they are keeping him happy.  This was yesterday afternoon and he doesn't look to be suffering so I think he'll survive.  I miss this crew back home.  We miss home.