New Normal

It has been wonderful now that we are all home!  Owen is busy playing legos, wiiu, and watches videos on his iPad.  He is taking it easy as is expected.  He has been eating so well, which is just amazing!  I am still tube feeding him a ton trying to help him put some pounds on.

I have been busy finding my new normal,
or my old normal.  I am familiar with all the meds, but trying to get familiar with the new doses and on a schedule.  I am loving the simple things like rotating laundry and cooking dinner.  I am sure that will be old by the weekend.

We had an early morning appointment at the hospital. Owen saw Dr Z. and we had a quick visit with the nutritionist.  Labs were no fun, but Monday's labs will be better.  We have an echo scheduled Monday and I am hoping for some improvement.

Owen and Logan have developed a lovely cough but its from sinus drainage.  Hoping its a small virus that they kick over the weekend.  We have no plans.  Lots of R&R!  

Kam had finals next week and she puts so much pressure on herself to do perfect.  I am looking forward to summer break so my baby girl can enjoy some downtime.

I hardly have photos of Owen because he has boycotted clothes since being home.  ;)