Fresh Air

Today started off a little rough. Owen had a good night sleep but woke up with his tummy hurting. He is getting boluses of tube feeds all night so that we can optimize calories and get him gaining weight. I am pretty certain I would feel crummy if someone force fed me all night too. Tonight we will stop his feeds after 2am and see if it helps.

It could also be the many meds he gets twice daily.  Today he said his tummy felt fine just before starting meds...then he puked.  Poor guy.  I am going to have to space these out a bit.

I allowed his tummy to rest all morming and he fell asleep at noon for a 2hr nap.  He woke up and asked for nachos with black beans and jalepenos.  He ate a couple chips and a ton of black beans.

We got the okay at rounds to disconnect Owen from everything and let him take a long walk.  We even left the 5th floor and wandered to the 3rd floor rooftop garden.  The first time he has been outside in nearly 4 weeks!  There was a nice breeze and we walked around for a while.  It must have felt amazing for Owen.  I felt good just getting out of his room for a bit.

We came back and wandered the unit for a while and I gave him crazy wheelchair rides.  He didnt want to come back to his room and I can't say I blame him.  We took some toys back to the playroom we borrowed and Owen looked around for something new to borrow.  we found a Batman Lego set and that was just the motivation he needed to come back to his room and get plugged back in to monitors.

It took him about an hour, but he had fun!  He finished just in time for Daddy, Kam and Logan to show up.  Then Kel brought her girls.  We had dinner and Bridg took a face dive in the  cafeteria and busted her lip... at least we were in a hospital.

It was a busy day and Owen is still going strong.  He ordered dinner but wont eat a bite.  After 9pm meds he usually feels crummy again...enough to want to sleep.

  Tomorrow is a new day!