We are back at Phoenix Children's for Owen's fourth round of IVIG. We arrived in the CVICU at around 4pm and Owen was thrilled to be here! The day didn't start out so enthusiastic when Owen said "let's just reschedule today." Ha. I made a quick run to Walmart for some $.90 balls that have a surprise mini superhero inside. That was just what he needed to get excited for the hospital today!
It only took until 7pm to get the IV team here and the IV went in with one stick. The drama that ensued was another story. Owen has FIGHT in him.. holy cow! He was kicking and yelling and just wiggin out. I had to sit on his legs and hold his hand. We got it in and all is good. :)
It is now 8:30 and we still haven't started his IVIG... ugh. It's always such a process. I'm looking forward a long night on the sofa in Owen's room and praying he sleeps through all the temp and blood pressure checks.
Goodnight.
7 comments:
Wow, SERIOUSLY Nicolette?! He's a brat because he wouldn't stand for letting them poke him with needles and hurt him?! What is WRONG with you?! I've never met Owen or Andrea but have followed his story for three or so years, and NEVER have I ever thought he was a brat, and I will stand up for Andrea through ANYTHING because she is just that amazing. Spoiled? Maybe. What if he died tomorrow and they had spent more time punishing than loving on their heart-sick boy? I think they'd feel a lot better than you. My daughter just turned four and had to have four "birthday" shots; she screamed and protested and it took three of us to hold her down. Does that make her a spoiled brat too? You sound like you're coming from a place of guilt because your kid truly is a terror.
Andrea, I hope you don't pay any mind to her. You are doing a tremendous job with this life and I know your two babies will grow into amazing adults. Just look at Kam - she is amazing all on her own. She has a lovely heart and soul, and I see Owen does too. I don't know if I've ever commented; I stay pretty quiet on blogs, but I HAD to say something. It just sickens me to see someone write such a thing in such a nasty way. There's friendly advice, and then there's hurtful comments. If she were a true sickbabymama, then she'd get that.
Again, Andrea, you just keep doing what you're doing. God knows you're doing right by his angel. I can't wait until Owen has his new heart and he can start being a little stinker like boys should. ;)
With Love and Prayers,
Mel
really nicolette that is uncalled for. any kid will fight when they try to get an iv it doesnt mean they will be spoiled. iv never met andrea or owen but i think andrea is doing a verry good job and i hope she doesnt listen to your rant. maybe your pmsing but it dont mean you can comment and be rude to her
I LoVe Owen's spunk! I had to get two shots on Monday (flu in one arm and tetanus/pertussis other arm) and I was a little squirmy; let us not forget Owen is a child! Owen is usually amazingly cooperative; I am endlessly amazed. Such a super trooper!!!!!
Nicolette..seriously? I am just going to take the high road and delete your ignorant comment. You have no clue. Your comment doesn't bother me one bit. Negativity be gone.
Hope you ave a restful night with no side effects. Our children have to deal with so much. I nearly punched a man the other day in the lab. He said Broc was spoiled cause he was playing on the I pad. I was so mad I politely said you have no idea what he deals with on a daily basis. That was last Friday he had just spent 9 hours in the ER the day before. Some people are so ignorant.
You are doing the best you can. We all are.
Good on ya, Andrea. :) I am glad to see that you're like a duck in a pond and it just rollllllls off your back. I have no doubt that this journey has formed and shaped you into one strong, resilient woman - a woman I look up to immensely and hope to be in kind to, someday. From my own health experience, I have learned that that is one of the most important weapons you can have in your auxiliary* for going up against the oftentimes misinformed, misguided and even prevaricative system that is healthcare. YOU are Owen's everything: doctor, nurse, therapist, advocate, lawyer, teacher, and above all, mother. YOU HAVE TO BE the chief/number one/top of all of those titles to Owen because nobody is going to look out for Owen's best interests like you. You are the chief because you are the only one meeting with all these different healthcare professionals, thereby giving you the most ammo to win the war. Nobody is going to fight as hard, last as long, and still smile all through it. Nobody, but you. (I know you know this; this is simply a reaffirmation on my part, to you. ;) )
Now that I've broken out of Lurkerville, I think I shall keep up appearances around here. It isn't so scary anymore!
Prayers Abound,
Mel
*Yes I've learned it, but I'm still working on being as good as an advocate to myself as you are with Superman. My kids thankfully haven't had any super-serious health concerns, but even in the slightest of ills I am the fighter that we should be. So why then does it seem so hard to do for our own wellbeing? It can be intimidating, but I've unfortunately experienced the lifelong disability and pain that comes along with NOT speaking up.
Kerrigan - I am so sad this happened to you in person! Just know that some people, at their very basic core, are just plain stupid. This is a very irritating medical condition in which there is no cure. We just get to sigh a deep breath of relief and thank the Lord we don't have it. Why he felt it so very necessary and urgent for you to know that he thought your child was spoiled, as if you'd immediately say, "Oh, you're so right, Brilliant Man in the Lab*! Offspring, give me the iPad! We must do away with this evil!", is well beyond me. I'd say he made a grand misreading when he thought that you'd care. ;)
Just like Andrea, you know what you're doing. Just keep on truckin'. :) Prayers to you and your family as well - I do not know your story, but families dealing with any hefty health issues, especially that of a child, deserve all the love, support and prayers we can give. I hope you're little boy is feeling better. (I should go click your name to see if you have a blog as well, huh? Lol.)
- Mel
*Any way you write that, it just sounds suspicious and hints to a Lab-Dog, not a Lab-Lab. First I wrote "Man in Lab", but that did not sound well at all to me. And neither does the other, but it's better. I hope. Is it just me? Haha!
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