Waiting...

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Today we go back to the hospital for Owen's second round of IVIg.  It's hard to believe that two weeks have past.  Owen remembers every little detail of his last stay and he is less than interested to go today.  Yesterday he told me .. "I don't want any IVs anywhere on my body."  So I asked him how we will get the immunoglobulin into his blood and he says "well.. we can just get a chainsaw and saw into my arm and then put it in!"  Apparently a chainsaw seems less stressful than an IV. 

We are just getting a few things done around the house this morning while we wait for the CVICU to call with bed availability.  We are planning another overnight and packed our bags.  I promised Owen a new Spiderman toy at Walmart on our way.  I just hate this all for him.  He knows that he needs these infusions and what they do.

I told him that the IVIg is full of good antibodies and his blood has some bad antibodies.  When we put the good antibodies in, they go through his blood and find the bad antibodies and kick their butt!  He knows those bad antibodies can gang up and attack his heart, so he needs the good antibodies to defend his new heart.  Then, in the end, he will have a superhero heart and have the energy of a superhero.  Superheros also don't require oxygen. :)  He is so tickled to get a heart now!! 

I'll post more tonight after we get settled in our room and the infusion started.  We are going to try a different type of pre med since he had an icky reaction to the iv benedryl last time. 

Not looking forward to today, but we will make the most of it!

And here's a little look at Owen and his best buddy while having a play date this week. They played Super Smash Bros for at least an hour.  Zero communicating, other than "I gottcha!"  They were just as happy as could be!!