Good morning from sunny AZ.
We had a decent night. We finally got Owen's IV placed at around 9pm after waiting six hours for the IV team. We started his infusions at around 10pm. Owen didn't have any reactions to the IVIG, aside from some puking. He woke up at 3am feeling like he just needed to have a chat. He talked to the nurse, talked my ear off and was full of energy. So we are exhausted this morning, but he is happy and that is what matters. Here is our morning view.
Aside from a few medical mishaps I caught, from missing medications to wrong IVIG dosage, things have been going okay. Owen had an echo this morning and the nurse just brought in his meds. "I don't give cardiac meds often" doesn't make me feel too confident. Seriously. Don't tell a parent that.
We are waiting for Owen's IVIG to complete and then we are OUTTA here. Cardio just came by and Dr Jedeiken introduced himself. Wishing we could win the lottery and just move to Palo Alto and be independently wealthy. Time to go back to sleep.
2 comments:
oh andrea :( i'm so sorry you & mister owen have such a run at pch. it breaks my heart. as an RN and chd'er myself i want so badly to be part of the team there to ensure that kids like owen get the BEST care from someone who understands what it's like to be there. hopefully soon i'll find a way to get on staff there & then you'll KNOW owen will get great care :) haha
Hospitals can be so frustrating! And, a 6 hour wait for an IV is the most absurd thing I have ever heard! Try to hang in there, remember our thoughts are with you. Jen
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