Our week has been so great. Very little TV watching has been replaced with plenty of time outdoors. It has been wonderful. Each night when Daddy gets home from work we have family dinner and then we have been off to the park, the pool, or just chillin in the hot tub. I will give a big shout out to my husband for this one because he is getting me out of my stress bubble. The last couple of months have been so full of stress and mixed emotions.. it's nice to just feel like I broke free of it.
Kam and Gigi are dancing at the Dbacks game tonight and are so excited! It's a big game tonight, Chase field will have the roof open and the fireworks are just icing on the cake. We are going to have a great time! This little video is Owen singing the Ball Game song. You can hear how winded he gets after just a few words :(
Now for the GREAT news!! You ready for this? I got a call from Stanford yesterday and they had discussed Owen's antibody results from his first two IVIG treatments. Before his first treatment, his PRA Class I antibodies were at 29% and his Class II were 98%. After his first treatment, the antibodies dropped slightly. His second treatment on the 5th started with his Class I antibodies at 27% and his Class II at 80%. After that second treatment on the 6th, we drew more labs and his antibodies came back at ZERO!!!! His Class I and Class II are ZERO!!! I call that answered prayers.
What does that even mean?
Right now, Owen has been listed for a heart for three weeks now. He is blood type B+ as in "BE POSITIVE" and with those pesky antibodies, we had to place voids on the donor heart we can accept. If the donor heart had any of those antigens that Owen has built up antibodies against, we can not accept the heart.
With Owen's antibodies at ZERO, he can accept ANY heart with his blood type and size. That is a huge, huge deal! I am so thrilled!
Owen's team at LPCH are being cautiously optimistic, which I fully support, and they are keeping the voids on his listing with UNOS for the time being. His next round of IVIG is scheduled for the 19th and we will draw labs pre and post treatment. If those both come back as 0, then we will remove those voids from the listing. If Owen were very sick in the hospital and may not make it another day, they would approach things differently and remove those voids today. Thankfully, we are in a good place and have time on our hands.
Thank you for all your prayers and support. We are so blessed and not a day goes by that I don't realize how fragile and precious life is.
12 comments:
Wow! What amazing news! We are so happy for you guys!
Oh Andrea - that's wonderful news! We'd been hoping and praying his antibodies would reduce, but didn't expect ZEROS!! I'm so thrilled for you - that's one less thing to worry about. Let's hope he's still at zero after the next treatment! Loved his singing too - he's a star! :-) x
Love the video but must say I LOVE LOVE LOVE THE NEWS!!!!
True blessings.
You sooooo deserve some good news!
xoxo
That is great news! Hoping the good news keeps coming for our sweet heart friends!!
So glad you got such great news! Such a blessing!
This is all so great; so thankful!
Prayers are answered in Owen's behalf and this isn't our first one. Those who follow his story
know what a special fun spirit he has and such a delightful personality. This gramma is in awe of the blessings our Father sends our way regularly...your little family deserves this good news!
Jumping up and down for you at that AWESOME news!! Continued prayers.
Amazingly wonderful news Andrea! Yay!!!! Still praying!
That's awesome news!
OH wow!!! Fantastic news!!! And Mr. Owen may I just say, you and I have the exact same blood type! lol Wow.. Go Owen Go!!! Love the video, too!!
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