After 21 hours in the hospital, we are home! We drew all his blood pre and post IVIG to send to Stanford's antibody lab. I dropped the specimen off at FedEx on our way home from the hospital. We should know next week if the IVIG has helped at all. I will call to schedule his next treatment in two weeks.
Aside from the IV Benedryl, Owen had no side effects to the IVIG. He is tired, which is to be expected, but nothing else negative. Right now he is a little bit flush, so I am hoping a fever isn't rearing it's ugly head anytime soon. I'm pumping fluids and am getting ready to put him down for a nap soon.
It's always a reality check to walk the halls of the CVICU. Not only are we grateful for how far we have come, but there is a scary future ahead.
I have a bunch of phone calls to make, picking up Kam, and tonight is a mandatory meeting at the dance studio. It's always an adjustment to go to something like a "hair and make up meeting" to talk about how poufy to make their hair for competition, when I just left the ICU where so many little ones are fighting to survive. It certainly puts things into perspective for me.
We have a busy weekend and I am hoping to get a good night sleep tonight. I can't believe my son is listed for a heart.. is it really happening?? I guess it just hasn't sunk in yet.
Have a great weekend!
Friday, August 24, 2012
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3 comments:
I'm glad that first IVIG is behind you, and that Owen seems to have had (almost) no ill-effects.
I bet going from ICU to dance meetings really is jarring!
Just keep swimming!
Great to hear he did well with the IVIG treatment.
Glad you are home and that the treatment went well. Praying for no side effects!
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