Owen is SO excited to go to the hospital today! I just received a call from cardio and the bed situation in the CVICU isn't looking good. They are slammed today. They are trying to do some rearranging and so it will most likely be later in the afternoon, or even tomorrow morning. Owen has been talking all about how fun it will be to play games, watch movies and he's "not scared of the IV".
Last night he told me.. "Mom, I really want a pretty nurse. One with green eyes and brown hair." Where he comes up with this stuff is beyond me. I'm just glad he's looking forward to his long days in the hospital for these very necessary infusions.
We also got APPROVAL!!! today from Owen's secondary insurance to cover air ambulance!! This is huge and exciting because it means we can wait in Phoenix, at home, for Owen's heart. If everything goes smoothly, and Owen doesn't take a turn for the worse, we could get a heart offer while waiting at home. I hope that everything goes seamlessly with this process because it will open up a whole world of options for other families. We have known so many heart families that relocate far away from home and wait for years for a new heart. I cannot imagine, but would drop everything and do the same thing if we had to. This approval is the biggest blessing!!!
I haven't gotten confirmation from Stanford yet, but I assume he will be bumped up to status 2 as of today sometime. They already have him listed with UNOS as a status 7, or inactive status (hold), until they got this approval.
Things are falling into place as they always do for us. I am anxious to get things rolling, but scared out of my mind. Please say a prayer for Owen that he has no negative side effects from the IVIG infusions he will receive every 2 weeks. The biggest side effects are migraines and vomiting.
Thank you for all your support through this!
>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>
I have a new review post for Con Agra foods today so scroll down to the next post and leave me a comment!!
I know there have been a lot of review posts lately. Not only are they fun to write, but all the income earned goes directly into Owen's medical account. Thanks for reading! :)
Wednesday, August 22, 2012
Subscribe to:
Post Comments (Atom)
8 comments:
So glad you got the approval to wait at home! Keeping Owen in our thoughts and prayers!
What a relief!!! Take good notes on how you got them to approve that so I can pick your brain if we ever need it in the future!!
Oh Andrea - that's great news! I've been trying to leave a comment for the last few days but for some reason my phone wouldn't let me! So glad you've had the transport approved - it'll make a world of difference for you all to be able to wait together at home.
I can't imagine how stressed you must be feeling - I think he uncertainty would drive me mad - the waiting and not knowing when things might happen. I remember how terrified I was before Charlie's Fontan and how I felt permanently sick in the run-up to it.
Like you say though, things are falling into place for you - and there are so many people thinking of you and prayers going up on your behalf.
Really hope the infusions go well for Owen and he manages to avoid all the nasty side effects. He's such an amazing little fellow - here's hoping he gets his pretty nurse!
I know you have a big community of heart mums out there to support you, but please know I'm only an email away if you need to let off steam.
Sending massive hugs to all of you - tell Owen that Charlie sends a big high-five all the way from Wales xx
This is wonderful news! My heart is swelling with excitement for you!
What fantastic new.so happy for you all.
AWESOME news!!! I am so happy that the secondary insurance is coming through for all of you. One less stressful thing on your list of concrens right now. Praying things work out for the infusions!
A MiRacLE for the air transportation approval!!!
Prayers during the infusions and for a nurse so pretty that Owen's eyes sparkle with joy!
So wonderful that you will be able to wait at home!!! What a blessing!
Post a Comment