Breathe. I need to keep reminding myself of this.
Owen's Cath was bumped up a day early.... tomorrow at 7am!!!
Breathe.
I have been going a mile-a-minute since Tuesday afternoon. Owen was thrilled to get on the "airpane!" It was easier than expected and security didn't ask for half of the doctor's notes that I was armed with. They were great!
Owen talked non stop on the flight!! I gave him a baby wipe and he cleaned the plane for at least 45 minutes. He climbed over the seats and then crashed for the last 15 minutes. We all had a smooth flight.
When we finally got to the hotel, I realized that I forget the Vitamix Blender. PANIC! That is how Owen gets 100% of his nutrtion. We ran to Target and bought a blender and tons of soft foods.
Uncle Rustyn (Carson's little bro) came down from San Fran to hang out with us for the night. Owen showed off ALL his skills and we went to the Creamery for comfort food. That's when I got the call from the NP from Stanford and she said we need to be at the hospital at 7am tomorrow.
They are going to do his echo, then clinic with Dr R. and then he'll go to pre-op and into the cath lab. Then we'll be staying the night at the hospital tomorrow. By Friday... we'll have answers.
Breathe.
Owen had SUCH a great day today. He was full of energy, playful, silly and it made me question why we were even here. Oh. But he is SO so blue. I am quickly reminded as to how sick he is. I am just amazed at how well he tolerates all of this.
Tomorrow will be a big day. I will post throughout the day and hopefully get lots of pictures uploaded. I'm off to bed. We have an early wake-up call.
Wednesday, September 8, 2010
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14 comments:
Hoping everything goes well tomorrow - you guys are in my prayers!
Good luck with everything! Lots of prayers coming your way.
We will be thinking of y'all tomorrow and praying for good news!
Wow! I'll be thinking of you as we battle our way to Philadelphia. Prayers from coast to coast. I'll be anxious to get off the plane and read your updates. Heart hugs.
Positive thoughts and special prayer requests are being said in Mr. Owens name.
Big good news hug!
xxoo
So glad the flight went well! Who needs DVD players when you have a baby wipe to clean with!
We're thinking about you somuch as Owen has his cath - hoping everything goes really smoothly and that they can do a few 'tweaks' to help with the blueness. He's such a superstar! Big hugs all round x
Prayign for a smooth trip to the cath lab today.
Keeping you in our thoughts and prayers today.
We'll be thinking about you all day today, praying that all goes well.
Good luck today! We will be tuned in to the blog all day hoping that you get some good answers!
Owen is in my thoughts and prayers today. Hoping you get some good news soon.
I have been following your blog for some time now and just have to say Owen is just the cutest little guy!! My son also has HLHS but is doing very well. My thoughts are always with you and Owen!! Good luck today!
I will be saying an extra prayer for Owen tomorrow. I hope you are able to get some sleep.
Thinking of you lots today. Isn't that always the way it works...they have a great day & seem fine when it's time for the doc to take a look. Then they turn blue as a blueberry, just as you drive away. Well, that's our luck! Anyway, praying for some inspired answers from the doctors...hang in there, you have a lot of people on your side:)
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