Now it's on to lodging options.... Ronald McDonald house says you can't reserve a room, but to call 24 hours in advanced?! Hmmm... so just show up on their doorstep and hope they have a room? If not... we drive around and find a random hotel? I don't like surprises... I'm a PLANNER and I will make sure we have a PLAN before arrival.
I'm hoping we'll get a good feel for the hospital, surgical and cardiology teams so that we can make a decision of whom to continue Owen's care with.
MEANWHILE... here is how Owen continues to spend his days.. and NIGHTS!
8 comments:
NEVER pass up a trip to Disneyland, especially if you will be that close. I hope that all goes well with your visit(s) and you feel confident with where you will continue Owen's care. I think of you so often Andrea and I pray that only positive things will happen as you continue your journey.
Keisa
Wow! At least you have a date to plan for now and Disney would be so fun!!! So will this be just a consult visit or will you plan on staying for the duration (until transplant) once you decide on the hospital? You're in our prayers!
Love,
Katie
I'm hoping this is just a VISIT, consultation, get all the icky bloodwork done and come HOME for Christmas! Then, we'll see where 2009 takes us.
That's my hope, but the transplant coordinator was clueless on the phone.
WOW next Thursday?!? As I have said before, please let me know if there is anything that I can do to help. I also forgot to mention that a friend of mine who is Dr. Bailey's nurse at Loma Linda, (Carlie's hospital) and is very knowledgeable, said that she would gladly talk to you if you needed any information regarding anything about transplant. Even though this isn’t one of the hospitals that your insurance approved, I thought any information would be helpful. And if you guys do decide to check out Disneyland, we'd love to meet up! The girls and I are actually planning on going on the 12th…hope you have a safe trip.
Shannon
What a cutie! Hope your trip is very succesful (sp?) and fun too! You will be in our prayers.
That would be so fun if you could go to Disneyland. It would make the trip so much funner. Owen is such a cutie. I love that he snuggles with his little toy. I will keep you in my prayers. I hope you get your travel accomadations figured out.
Holy Cow!! Good luck with everything and we will continue to pray for you. It will be interesting to hear what you find out when you get there. And have fun in Disneyland, I am super jealous!
Wow! Good luck with the trip and the appointment
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