I emailed Owen's cardiologist at UCLA on the 24th to notify her of our discoveries. Carson found a donor card that was given to him after Owen's Norwood in February. Dr. Pearl had to use a patch during the surgery and up until now, we never really thought anything of it. It turns out it was a donor patch from another human so that explains why Owen's antibodies are SO high.
Dr. Halnon replied today and stated that they are still not sure which particular antigens he's developed antibodies to. Until they get this information, they won't know how to list him for a transplant. She said they should have a plan of attack soon. She said the donor tissue he received EXPLAINS why his antibodies are so sensitive.
Meanwhile... we WAIT and see Dr. Stock (our Phoenix Cardiologist) on Monday.
Monday, December 29, 2008
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4 comments:
I can't believe he is going to be one next month. What a year it has been for all of you. I sure hope they get his antibody mystery figured out soon so they can proceed with listing him. The sooner he gets his brand new, healthy heart, the better.
He really does look wonderful though and so happy. It sounds like you had a great Christmas, but MUCH< MUCH earlier than ours. The girls did not wake up until 7 am and that was fine with me!
Keisa
Wow, glad there is a reason for the hight levels.
I can't believe he's almost 1! His birthday is the day after Abby's...so we'll eat extra cake in his honor!
Anyway, hope they get all of the donor issues ironed out soon!
Hey hope you guys are well...just checkin in on ya!
Just checking in on our little buddy. Hope you had a Merry Christmas and praying that Owen can get listed soon and start his medicine to ruduce those antibodies!!!!!!!
Love to you~
Suzie
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