This was Owen post op one week ago....
This is Owen ONE week later...
After all he's been through and he's got a GIANT smile on his face!!!
Owen had a minor setback today... they found a small pocket of fluid between his left lung and spleen on XRay today. Dr. Pearl sedated him and put a tube in the pocket to drain it out and it immedietly drained 45cc's of liquid goo....then stopped. They tested it and it came back something I don't quite understand, but it has to do with his body not digesting the fat content in the pregestemil formula he was on. So now we are on the horrible, terrible, icky smelly, expensive ...Vivonex formula... which only has 5% of the calories from fat which is supposed to solve all his problems. The nutritionist says this is temporary for about 6 weeks. She also said don't be surprised if he completely rejects the bottle because the flavor is just aweful and has a metallic after taste. BLAH! We'll see how he reacts tomorrow when speech comes in to give him his bottle. Besides this and his withdrawls from all the pain meds, he is doing great!!!
The plan is to start increasing the captopril as we decrease the milrinone and we'll find a happy balance to optimize his heart function.
Everyday is a progression and we can't wait to get him home again.
6 comments:
Holy cow!! He looks so much better. Mr. Owen you are so stinking cute, I want to just snuggle you up and give you kisses.
Love Ya!
Oh he looks good!
Gosh he is going through exactly what Josh went through. From the nasty formula, to the med withdrawl. In no time you'll be home enjoying your baby & his new little heart!
He is such a sweet baby. I am so glad to hear he keeps doing good. When he comes home aand life is not so crazy we would love to meet him. And seriously we would love to help in anyway you need.
yeah for the smiles. He is adorable. I have heard of a lot of people coming across that problem. He is doing great. You guys are an inspiritation.
Glad to see that Owen is recovering from his Glen! So different than the Norwood, right? Our first girl (heart healthy) was on some terribly nasty (and expensive!) formula and we were happy to see it go. I hope Owen recovers soon and you get to bring him back home before too much longer.
That smile is too much! What a beautiful boy!
-Alison (abby's mom)
Eden developed Chylothorax and just finished her 6 weeks of Vivonex. They had to insert two chest tubes to drain her nasty stuff. Little Owen should be fine in no time. He looks so fabulous. I have been peaking in on him and I am so glad that he is doing so well.
Keisa
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