What a difference 12 hours makes! Owen had a great night and is pulling through. Yesterday was as scary as they come. We heard around 2 that he was off ecmo and that he would be in the PICU in 30 min. Then, over an hour later, the nurse came in and said things weren't so hot, his O2 sats were in the low 60's and Dr. Pearl was going to leave the chest open so he can get back in quick. Then her quote was "put a token in, your about to go on a rollercoaster ride"... what does that mean??? After another painstaking hour of waiting, they brought us back to see Owen. He looked as scary as we anticipated. They said he was stable, but just 30 min earlier he was not okay. Dr. Pearl (surgeon) said "Owen is okay, but I am worried." He had to spend more time on the tricuspid valve repair than he would have liked and the heart was still so fragile from the Norwood so he had to repair some tearing. I was trying to be optimistc by saying we'll take this one day at a time... to which Dr. Stock (cardiologist) replies "let's just take this hour by hour". Needless to say, we were a bit scared, but still had a peaceful feeling about things.
They assured us it was okay to leave for a while because Kamryn had her 2nd grade music program and would have been devestated had we missed it. It was a nice distraction from the day and Kamryn did a fantastic job! I'll have some pictures posted later. :)
I rushed back to the hospital to sleep with Owen. The Dr.'s came in this morning and are amazed at how well he is recovering. He is almost off the nitric oxide and Dr. Pearl is in closing up his chest and sternum right now. They are slowly lowering his vent settings and weaning off some of the meds. We're hoping for a speedy recovery but are cautiously optimistic because we still don't know if this repair will improve his heart function. He still needs all the prayers he can get!
I'm going to go back to my little puffkin baby. It is common to have upper extremity swelling after the Glenn because his blood flow needs to balance out and gravitate to the lungs. He's still beautiful even with a puffy head and marshmellow hands.
Thursday, May 1, 2008
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9 comments:
I am so glad he is doing better & had a great night. I can't imagine how scarry this is for all of you. He might have already been put on, but I called and put Owen on the temple prayer list. Thanks for keeping us updated, you are amazing!
I'm so glad he is doing better!! I was worried this morning when there wasn't a new post..
We love you and continue to pray for you.
I am glad to hear Owen is doing better today. The Mullen house is saying lots of prayers for all of you. Thanks for the updates. Jean
"huge sigh" thats better... I almost forget to breath when our buddies are having surgery or not doing so good... So today's news great!!!! we will keep the prayers coming....
Thank heaven! So glad to know things are going better!
Oh, what a relief! I've been thinking of and worried about Owen since yesterday, and I don't even know your family :)
Hope he continues to improve!!
our family does not know you nor little owen, but he is certainly in our thoughts and prayers. what a special little spirit he is, to endure so much! keep fighting little owen!! we have plenty of love and prayers in our family to go around!!
colquitt family
syracuse utah
I am so glad that Owen is doing better. I thought and prayed for him all day yesterday.I can't wait to see him tomorrow and chat a little. We had a nice get away, but I am also happy to be back so I can keep tabs on Eden and all of her heart baby friends.
Keisa
wow..the rollercoaster never ends with our little ones does it?! He seems so little to be going through the second surgery already..but I guess thats how it goes. Soo glad he's doing better from yesterday..soo scary. It's so hard to have them home and alert and happy to being back sedated, puffy, and intubated, so we are praying extra hard for you all. He'll be back to his old self in no time (probably a much better self!).
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