Shopping Center Fun

**UPDATE** We just got a call and there are no beds today.  Deep sigh.  We could have been home this week and saved hundreds of dollars.  So frustrating.  Staying positive!  I'm going to call and rearrange travel for Carson and Kam now. 

Today is a new day. I am looking forward with positivity. Hoping for a lot of discharged patients at LPCH.  We really want a bed today.. never thought I'd be so excited to go to the hospital!   I should hear sometime this morning.  Last night Owen and I headed out to the Stanford Shopping Center to walk around.  Neither of us are hotel dwellers, we like to get out. 

Earlier in the day, Owen made friends with our next door neighbors at our hotel.  They are an older couple from the South and Owen told them we were going to the zoo and his favorite animals are Giraffes.  Before we left for our evening outing, we got a knock on the door and our neighbors bought Owen a gift...he loves it!!  It was very sweet of them and he loves his "Stanley the Giraffe".

Owen's favorite place at the outdoor mall is the "tunnel of trees".  We first came here back in 2009 and here was our pic at the "tunnel of trees" back then.
Four years later...

We were starving so we decided to share a kids BBQ Chicken Pizza and wedge salad.   The weather was gorgeous and we walked around the mall for at least an hour afterwards. 

There are a bunch of little flower gardens like this all over the mall.  Owen loves to stop and explore.  We went in a few stores and everything was "Bobo would love this.... we should buy this..."  (Bobo is Kam). 

We came back to our hotel and crashed hard.  It was a great day in Palo Alto.  Today we are planning on heading over to the RM House with a day pass and go to Camp Ronald McDonald while we wait for a hospital bed.  I thought about doing a load of laundry, but that's no fun. :)

Museum/Zoo and Park Day

We decided to make the most of our day. I checked in with the transplant team at 11am and bed availability wasn't looking promising.  We decided to head over to the Jr Children's Museum and Zoo.  Admission is always free!  I like free.   It was a really fun place to burn a couple hours waiting to hear back from the hospital.  Owen liked the bat cave exhibit the most, but we saw lots of little animals.

We headed indoors to the museum after walking the zoo and Owen loved exploring.  There was a real beehive exhibit and it made me cringe.  Owen loved the Solar Power machine the most. 

There was a cool exhibit on creating energy and electricity using water and wind.  This was one of those balls you put your hand on and the electricity sticks to your hand. 

We were on our way out and followed a crowd of families  to the park around the corner.  Palo Alto has a lot of great parks for us to explore.   This one was really crowded, but it had a lot of things to do.

Owen was totally worn out, so he preferred swinging for a good 45 minutes.  The weather could not have been more gorgeous.  My guess is 70 degrees with a light breeze.. it was wonderful!

We stopped on our way home to grab some hand soap.  Hotels never have antibacterial soap, only those smelly bars of soap and I can just imagine the bacteria growing on them as they sit in the little soap dish. 

I finally heard back from our transplant team around 3pm and there are no beds available at all tonight.  I was discouraged.  Stressed.  I just want to get the ball rolling and moving forward.  I had a plan and it's not working out the way I envisioned.  We were hoping to be outpatient by the weekend for Daddy and Kam to drive up and spend Father's Day and our Anniversary together.  At this rate, he may still be inpatient. I know things come up.. emergencies happen. It has just been a lot of rearranging schedules, oxygen delivery, ect. 

I have been speaking with the RMH daily and we are on the top of the list.  We have this hotel covered until Sunday thanks to our private insurance. I am trusting that things will work out.  We are going to walk around the outdoor shopping center and maybe even get a treat tonight.  A small date with my boy and then back for a movie and some cuddle time. 

I miss my baby girl and hub already.  Owen woke up this morning and said.. "I miss Bo and Daddy."  It's going to be a long road ahead. 

Hanging Out and Waiting

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> <<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<< >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> <<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<< We had a great evening and slept really well. I got a call from Owen's transplant team around 7:30 and there wasn't going to be a bed available until almost 9pm. Then I got a call around 8pm that Owen was bumped for an emergency case. A part of me was disappointed because I'm ready to get things started... not to mention the hotel is $$, rental car and I could be at home in bed with my family. Then I just settled into bed and cuddled my boy, thankful that he was not the emergency case of the night. At around 10:30pm, I got a call from one of the cardiologists in the CICU and he said.. "I was just letting you know that we don't have a bed for Owen tonight. I'm so sorry." With that, Owen and I drifted into a deep sleep. It was bliss.

Today is a new day and Owen was up at 6am ready to go.  We started with breakfast in the hotel lobby.  The gentlemen next to us poured himself a cup of waffle batter, but didn't realize he was supposed to cook it.  He sat next to me and smacked his lips as he drank down a cup of batter with his coffee.  Ewwwww.  Owen was eating a waffle next to me so he had to know.. right?? 

Owen really wanted to go check out the pool ... there was a big warning sign on the gate that said "If you have diarrhea, so not swim!" Or something like that.  Ewwww. 

Now we are getting ready for the day and we will be outdoors exploring.  I'm just waiting to hear from the hospital (hopefully before noon) that there is a bed available and we can come in.  I may start to get frustrated if we can't get in today.  They did know we were coming on this date for the past 5 weeks.  Trying to stay positive and optimistic! 

I'll keep y'all posted! :)