Monday, April 17, 2017

Our Easter Weekend

We had the best weekend!  Owen and I were so excited to head to the airport on Friday.  Nothing is better than being together, all five of us, under one roof.  It was the first time we were all together at the RMH and it was amazing not having to run back and forth to the hospital. 
Logi was so happy to have us all together, but I think he loved the trundle bed the most.  "Jumpy Jumpy" he would jump off the bed over and over again.
We had nachos at the RMH for lunch before heading to the hospital to meet our social worker  and spend some time in pathology.  We were able to see Owen's heart, Aly's heart, and marvel at the miracle it is.  They had removed the coronary arteries to do research with them.. anything to help them learn and understand Coronary Disease better.  It's the number one reason for graft failure and I'd love for it to not be an issue in the future.  There is so little understanding of what actually causes it and there is no cure for it, besides re transplant.


We went out for dinner and then the boys got fresh haircuts.  Carson calls Logi's cut "lawnmower sheek." The Supercuts guy did the best he could I suppose.  :)  We grabbed dinner and headed back for a quiet evening on the patio.  Logi found his first potato bug.  I love the way he scrunches his toes, clasps his little hands together.. man I love this boy!
Daddy grabbed donuts for Easter breakfast while I got the kids up and moving.  There was an Easter egg hunt at the RMH and the kids got even more candy.  Owen found the lucky Golden egg and got to pick out a Build A Bear.  We followed that up with an Easter lunch of hammy sandwiches.




We had bought Owen's favorite ribs from Costco and slow cooked them in the oven a few hours before Daddy threw them on the grill.  The kids broke out the bubbles from their Easter baskets and the night was perfect!!  It was the best Easter and we are so grateful!!!
After very early labs on Monday, we headed out to a new breakfast joint.  Who doesn't love it when they give each child a bucket of toys to play with?!  Kam and I followed that up with Pedicures and she got her nails done for PROM.  Carson had some time with the boys and then we had to head to the airport.
This little guy stayed with us this time and will spend the next four weeks (or so) in Palo Alto.  Today was our first day with an active 2yr old and Owen says "this is not going to be too bad."  Logi is busy but so much fun.  I'm counting down the days until we get to go home and be together again.  More importantly, I'm praying that Owen continues to do as well as he has.  He is eating different foods, gaining weight without tube feeds, and hasn't complained of a single stomach ache (which was a daily event before transplant).  He feels great!!!
We miss Daddy and Sis already but Kam just facetimed and said "I feel kinda free!"  I'm so happy she gets a few weeks to just be a 17yr old, hang out with her friends and enjoy some time to herself.  

3 comments:

Amber said...

Im just wondering how long mom and owen will stay at RMH? Look at owens cheeks❤

Monica Kapler said...

So happy for you guys! Logan is just the cutest thing!! It's wonderful to hear how good Owen is feeling. Answered prayers. Kamryn has been so amazing through this whole year and I know you are so proud of her. Loving you all and continuing to pray for you and Owen's donor families.

Pam said...

I am just so happy for you guys, this blog post just gave me chill bumps! The way our good Lord is working and has been working in your lives is just awesome. Kam is just an amazing young lady who has taken on so much adult responsibility and I am so glad to hear she is able to spend some time on just her and her life....but I know she is going to miss Logan so much! Owen just continues to amaze me and I am so so so happy for you all! God is good all the time and I love seeing the miracles he still performs! You'll take care and enjoy each other! A friend in East Texas, Pam!