Wednesday, April 5, 2017

Biopsy 3

Owen had his 3rd weekly biopsy yesterday and everything went great.  He was out of there within an hour and it was the first time Dr Peng accessed him through the neck.  His pressures were Fantastic and I just got word his rejection score was 1A, which is as great as zero.  Last night we celebrated with a great dinner and RMH Bingo night!   Owen's buddy, Gage, got the call for his heart and Owen has been so excited for him!  The first thing he asked this morning was "any updates on Gage?"  They just posted he is finishing up and everything went great!  So happy for them.  To all the donor families out there... THANK YOU!!!
The CT Surgery team removed his staples in the cath lab and his incision looks gnarly, but great.  He had quite a bit of oozing those first few hours post op due to all his anticoagulant therapies.  The scabs are healing up and falling off and it looks like Dr Maeda stayed right on course from his previous sternal incision.  It's going to look fantastic in about six months.  His chest tube sites are healing well and are finally closing up.
Owen used to love biopsies and now he tolerates them.  He is ready to be done with the weekly visits, but he has one more, followed up with a 12 hour IVIG infusion.  Then we'll get a little break!  
We are trying to have fun and be cautious at the same time.  Owen is still on sternal precautions for another three weeks until his sternal bones heal.  We can't wait to get to the beach, discover local parks and have fun exploring the bay area.  We are being patient and letting him heal a little more first.  School starts back up on Monday, PT kicks in 2-3 days a week, and we'll have Logi here soon too.

Feeling Blessed.


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