Stanford Visit

We made it to Palo Alto and back in about 24 hours. It was quick and Owen was bummed we couldn't stay longer.  The team was not thrilled with his labs. His Prograf  (antirejection) levels were double what they should be and have just been all over the place lately.  His INR was double, his Creatnine and BUN were all elevated to more than double his norm.  Throw in his super crummy weight loss on top of it and we had to make some changes. 

We dropped his diuretics for the time being because he is clearly too dry.  If his kidney levels don't improve then we will have to discuss admittance to work on that issue.  Kidney's take a hit with all these anti rejection meds as it is...so we have to watch those closely. His INR and Prograf doses were changed and we will redraw all labs tomorrow morning. I'll also have to get antibody testing done and Fedex it back to the HLA lab at Stanford. 

Overall, his echo looks unchanged. We follow up with our AZ team in two week and back to Stanford in four weeks.  If his weight doesn't improve in the next two weeks, we will have to address that as an issue. The pressure is real!

I brought up dental work with the team as he does have a couple small cavities that would have to be filled in the hospital under cardiac sedation and they shot that down.  He is just too "unstable' to put him under for sedation.  We are trying out the new pediatric dentist that has hospital access today and we'll see what we can do. 

We have had lots of friends getting hearts this past week and another little guy today.  I'm so excited at their new chance at life, but so heartbroken for all the donor families.  Organ Donation is such an incredible gift! 

Thank you for all the continued prayers.  We have a BUSY month ahead and we are taking it in stride. Prayers for Owen's kidneys to recover and his heart to keep doing what it needs to do. :)