Moving on Up

We both had a great night sleep and got plenty of rest.  Until 5am, when I woke up with cramps in both calves.  Since Carson wasn't there to massage the knots out, I jumped up and stretched for 10 min to get it to stop.  Just then, Owens nurse called to let me know he wanted me.  Turns out he just wanted readjusted and went back to sleep until 9.  I figured I'd go find a shower in the hospital before everyone else woke up.  We drew labs off his beautiful PICC line and all his levels looked great (Chem panel, prograf and INR).  His vitals have been stable and he seems to really be responding well to the Milrinone.  He still has one more night of IV steroids (in case it is mild rejection) and hopefully his roid rage will end!

The best news of the day is that we moved out of the CVICU and headed up to a private room on the floor.  Owen slept through the transport and just woke up to watch movies.  I'm sure he will be up all night, but I have a couch in his room to sleep on so he can party all he wants...quietly.

 
We don't know what the plan moving forward will be...we have lots of conversations this week with the team about a long term plan.  We have options and Owen seems to be in an OK place.  We caught the heart decompensation before it got too bad.  Always follow your gut instinct..:Always!  I am grateful that our Phoenix team was so proactive in getting us transferred.  We have many angels watching over this boy...especially Aly.  Owen always tells people his superpower is Regenerating Abilities because he just keeps overcoming the odds and he heals so quickly...I would say Bravery...but what an awesome combination!