Weekend Together

We broke free!!  On Thursday afternoon, on our 100th day inpatient, Owen was discharged.  Carson, Kam and Logi met us at the hospital and we were outta there.  This weekend has been wonderful in every way.  Being together as a family of five, out of the hospital, has been the biggest blessing.

We got settled into the hotel, moved out of the RMH and took a long afternoon nap.  We had CPK for dinner, walked around the mall just a bit and went to a small little park to play before heading back to the hotel for the night.

 The next morning we headed out to find Owen some new tennis shoes.  His feet have grown so much and his poor gait is pretty weak.  We had the Creamery for lunch and followed that up with a two hour nap at the hotel.  Friday evening, we went to the Magical Bridge park and listened to music in the park while the kids played hard.  This park is incredible and made to accommodate all special needs kiddos. 

Logan went up and down this slide hill a billion times.  Owen got tired so I carried him up most of the time and he went down on his own.

We found a little bakery for soup and sandwiches for dinner before calling it a night. Another perfect day in Palo Alto.

Saturday was a get er' done kinda day.  I had to go to a billion stores.  We relaxed in the hotel a lot and watched too much tv while snuggling.  We made out way over to the mall to eat on the patio at Max's and called it an early evening. 

This morning we headed to Pacifica to play with some friends.  Allison is being super generous in letting me store a bunch of blankets, pillows and things we will need when we come back for transplant.  Josh, Sam and Owen played at the park together until Owen was just exhausted.  The weather was chilly and overcast... totally out of our norm and it was beautiful!

We had to call it an early afternoon so we had time to pack.  Owen has been begging for Olive Garden breadsticks since we got here, so we made a special trip on our way to the airport.  It was hard to say goodbye to Kam, Logi and Daddy again. :(  We will see them again in TWO days, but it didn't make the goodbye any easier.  It was hard coming back to the hotel without them this evening. 

Logi missed his mama madly! He wouldn't let me out of his sight and kept saying "mamama" while grabbing my hair and smooching on me.  We snuggled in bed every night.  Two more days!  I can't wait to give more time to Kam and Carson at home.  I can't wait to cook, do dishes, throw in a load of laundry and be present for my entire family.  Two more days!!!

Owen and I have a busy Monday and Tuesday.  Prayers that he remains stable and that we learn his new norm.  He is great at self regulating but you can tell he wants to do so much more than his body can handle.  We are so grateful for the past weekend we had with our family and even more grateful that we will be reunited at home very soon!