HOME

A few days at HOME and I am exhausted.  It is wonderful to be home and we are finding a new routine.  Before leaving Palo Alto on Tuesday, we had early morning labs and a quick clinic visit with the transplant team.  Owen looks good and we made our way to the airport.  He kept saying "I didn't think this day would ever come!" 

Pure happiness as we made our way through security and boarded our plane.  We did have the added drama of United Healthcare deciding last minute to DENY his life flight from Phoenix to Palo Alto when his heart offer comes.  They'd rather pay for him to be inpatient than to cover a flight.  Unreal. Because of this nonsense, we had to make Owen inactive on the transplant list until we got things approved.  It's actually been a small blessing because I can breath for a day or two and not stress getting "the call".

Owen had clinic with his Phoenix Transplant team on Wednesday, bright and early.  His echo looks really good considering what his heart has been through.  It's still very sick, but good considering.  Dr Z got a new baseline on Owen and we will be followed bi weekly and head back to LPCH in one month.  Of course they all hope we will have a heart by then.  We'll see.  I think that everything is in God's hand at this point and we are just trusting the process.  I am just in awe of the miracles that have happened in his life so far.  We lost a heart buddy this week to something VERY similar to what Owen just went through from the CAD.. but he didn't recover from the arrest.  Pray for this boy's family.

Logi is thrilled to have his big brother home!  He is the most active, sweet, full of love baby ever!  He loves his "mamamama" so much and has been totally clingy (as expected).  I could use a little less clingy at 2am, but he missed me so much. 

Kam is getting to be a teenager and not a "mom" for now.  She loves on Logi and Owen but then can go be a teenager too.  She has taken on a big load while I was gone and I she deserves this break!  Carson is loving having us home as well.  Nothing like getting your wife back ;) 

Life is perfect.  We are so grateful and happy!  Owen is relisted as of now and we have life flight all set up.  We keep hearing that things could happen SOON from the team.  You never know so we are not stressing it and just choosing to live life.  Thank you all for the prayers, support, donations and meals!  It has been a lifesaver for us!