Stent Placement Recovery

Owen did great in the cath lab. The stent was tricky to place but they got it in.  Owen's heart looked even worse than it did a week ago.  His filling pressures were significantly higher than they were last week.  Yesterday was an awful long day.  They brought him to the CVICU and he took longer than usual to wake up and was happy for about 10 minutes before reality hit.  He was so emotional and kept saying how dizzy he felt.  He was miserable so he begged us for something to help him feel better.  We gave him a small dose of Ativan which knocked him out cold for just a bit and then he woke up a little loopy and sad.  Turns out the anesthesiologist gave him Fentanyl with the Propofol and he doesn't do well with Fentanyl.  Poor guy. :(

He ordered food off the menu and hated it all.  Then Auntie Janesa came for a quick visit.. it was so good to see her and I'm bummed we didn't get a picture.  I ran out to grab him some Chipotle but he didn't feel like eating a bite.  I stayed bedside until about 10:30 when I knew he was asleep and ran back to the hotel for a quick nap.  The nurse said he woke up a lot and just asked to watch tv and I was back by 5:30 this morning.  He has been sleeping off and on and just not himself.  I'm not sure what's going on and we are still waiting on his Echo before discharge.  His labs were reflective of how he feels, which isn't surprising. 

In rounds today we discussed med changes... increased diuretics, added Asprin to the Plavix and ditching all the meds in the Zole family (Omeprazole, Fluconzole) because they interact with the Plavix. We had a long discussion about his poor weight gain.  I'm really going to have to push his feeds to get him to a healthier weight so he has a better recovery post transplant.  His poor tummy just can't take much more.. but I'll have to find a way to sneak it in... this is WITH Gtube feeds around the clock. 

We met with the social worker and transplant psychologist today to finish up the transplant eval.  He will have a Cardiac CT in Phoenix in two weeks and then they will present him at transplant conference next Friday.  It could be a few more weeks before we are able to list him as status 1B on the transplant list because the Sirolimus level has to be completely out of his system.  The good news is that Zangwill and Rosenthal are fantastic communicators.  Not only that, but Owen will be able to wait for his heart at home, in Phoenix, while listed at Stanford again. 

For now.. this little guy needs all the Mama love he can get.  He is just not loving this hospitalization and is feeling super ick.  He is completely out right now so I'm hoping he can sleep it off a little more.

Thank you for all the prayers.  The last week has caught up to us both and we are emotionally/physically drained.  Kam is back home taking care of Mr Logi (thankfully school is out) and Carson is working.  I think the Simmons' family needs a vaca in the near future! :)