Owen had a quiet night last night. We both went to bed around 10:30 and the nurse called me at 12:30 to let me know he wanted me. He just wanted to hold my hand and say "I love you..." and so we did that for about an hour before he zonked out again. I finally slept until 6am. He remained stable with no real issues.
There was a questionable plural effusion in his right lung this morning but we have been giving him IV diuretics and we now have him in the negative so he seems much better. We switched his Fentanyl to Morphine because he just gets agitated on Fentanyl. He is much more relaxed with the Morphine but he has been getting the itch... so now we are working with meds to try to help that stop. It's all about finding balance.
He has been very comfortable and opening his eyes. He had plenty of visitors (only a few at a time). Carson's dad, Monica, my Parents, Logi, Kam and Gigi have all be in and out for short visits throughout the day. He has really enjoyed that! He communicates well with everyone and we are all getting really good at reading his lips.
We started going down on his Epi and he is tolerating it well. We finally have his Heparin at a therapeutic dose. He is tolerating all the changes well. He is emotionally doing great and completely understands the situation and we love his little intubation smile.. he says it's a "smolder" and then raises his eyebrows for added effect.
Kam made this awesome poster to decorate his door today...
The other kiddos had a great day!! They spent the morning with Grandpa Todd and Gma Monica at their hotel. Logi got to feed the Koi fish and baby ducks and he loved running around outdoors. Kam gave Logi a morning nap at the hotel (she is the BEST big sister ever) and then she came to spend time with Owen and Carson. I took my little monkey and we had fun in Palo Alto.
6 comments:
I just love Kamryn's poster. It's the best! She is the best sister any little guy could ever ask for and a Mom's dream daughter. Such a sweet girl! Give her a big hug from me.I am so happy your day was a little better and things are peaceful enough to take some time to rejuvenate your spirits.
I am continuing to Pray for a Perfect strong heart and perfect timing to heal your Precious boy.
Lots of love to you and your family
Praying for your family. Asking God to heal his body.
Praying for you guys. We used to be Stanford patients with Rosenthal he truly is amazing. Keep your faith and hope momma. I am glad you got to be with your family and Owen was doing good for the day. Always keeping yall in my thoughts. Xoxo
Continually thinking about you, your family, and especially brave Mr. Owen! Sending lots of hugs and prayers your way!!
That's great that your daughter is able to help out in a situation like this (and it surely must be helpful that summer break is starting). I'd say that she is your mini-Me, but it looks like she is much taller than you.
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