IVIG Fail.

As you can see from this picture, Owen was thrilled to be heading to PCH for his IVIG today.  Turns out he is a much happier boy as of right now, because the hospital screwed up and now we aren't going.  As if me calling at 9am, 11am, and 1:30 wasn't enough to confirm that we were looking for an estimated time of bed availability, I called at 3:30 and was sent to the CVICU charge nurse.  She said and I quote "we didn't know Owen was coming today."  So my three previous phone calls confirming he was on the schedule?  So frustrated. 

She then proceeded to tell me that the ICU docs said that it's best he come tomorrow.  Apparently they have beds, just not enough nurses.. "because we didn't know he was coming."  The on call cardio in the CVICU said even she didn't know Owen was on the schedule.  Ok.. so tomorrow?

"We will let you know sometime tomorrow if we will have bed availability."  Seriously?  I was super annoyed and frustrated seeing as my car was packed and I had a very irritable little guy all morning that was pretty much dreading and anticipating his trip to the hospital to get poked.  Not to mention that getting a heart kiddo like Owen packed up and ready to go to the hospital is not a small task with his oxygen, feeding supplies, meds, ect.

So we came home, unpacked and I called our transplant NP.  She apologized and called me back 30 min later and said that the issue was simply not having enough beds, but that they knew he was scheduled.  Ok.  Seriously?  So what's the story and who dropped the ball so we can correct it and not have it happen next tiem.  Sorry, I am just venting.  If it was an issue of bed availability, then you could have told me that during one of three calls to 'bed placement' in Admitting.  That was not the issue.  So I asked the same question.. "so tomorrow then?"  Same answer.. "we'll call you tomorrow and let you know." 

I get that the CVICU is unpredictable and things come up.  I get that there may be a short nursing staff, or limited bed availability.  I also get that mistakes happen.  What bothers me so much is that this is Owen's 8th IVIG treatment since August and we have had an issue every single time. 

Thanks for the midweek vent. :)  So tomorrow then.  We shall see.