I almost spaced that Owen had a cardio appointment scheduled this Wednesday and I didn't write down the time so I called on Monday to confirm the appointment. They told me it was actually "tomorrow" (today), so we arrived at our noon appointment to find out that it was really scheduled for Wednesday and I was right all along. Sigh. Our transplant NP was there so she did a checkup and we squeezed him in for a quick echo. I don't know the results yet, as Dr J. wasn't in, but I'm not concerned. Owen has been doing phenomenal lately!
As of today, Owen has been waiting 5 months, 22 weeks, or 154 days {however you want to look at it} for his new heart!! I can wait many more months if he continues to be stable at home. It's seriously such a blessing! He has his moments where my heart breaks for him. Like on Saturday, at the party, there were some boys running around the backyard playing tag and wrestling. Owen said "I want to collect some friends". When I asked him if he wanted to go play with them, he said "I can't play like they do." Then today, when I took off his oxygen to change his cannula and he took a deep breath in sans oxygen and said "Mom.. I CAN breathe!!!" The cannula is so much a part of him that he thinks without it, there is no air. Ugh. Times like these make me pray so hard that a heart comes today!! Then there are times where he is just thriving and doing so good, I can't imagine him undergoing another open heart surgery. Especially one where they will remove his heart and pray like crazy the new one beats inside him. I can't even think about it without getting chills.
So we continue to wait. Learn. Grow. Make memories. In less than a week, this little handsome guy will celebrate his 5th Birthday!!
1 comment:
Oh man, reading this post really got to me. I am so sorry that sweet little Owen can't play like the other boys, but he will one day & it will be glorious! He looks so good. I'm always praying for Owen...he's always had a place in my heart. Love that boy! Hope you are well:)
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