I am amazed that just two weeks ago, Owen had open heart surgery. It's incredible how quickly he is recovering. He is feeling a little better each day and last night he put weight on his legs a couple times. That was pretty huge for him.
On day 4 post op, the nurses and attendings said they like to see the post op patients up and walking around. It was a punch to the gut. Owen wanted to do nothing more than sit up in bed for 15 minutes here and there. I had to quickly remind myself that this is Owen we are talking about. Mister laid back who rarely is on the move. I explained to the docs that he just started walking three weeks prior to surgery and how I wished that he had the energy to get up and walk around. So when Owen wanted to pull to a stand last night, even for a few seconds, I was thrilled!!
Owen has been a bit emotional lately. I know it's perfectly normal for post op patients to have changes in behaviors and so I am just taking it as it comes. Little things will set him off and his eyes fill up with tears. It's heartbreaking.
Another thing he's dealing with is not sleeping soundly. He talks in his sleep "no ouchies".. "leave e alone".. "mooovvveee over"... and he tosses and turns a lot. I wish I could tap into those dreams and sprinkle them with happiness.
I know that these things are normal and they will get better.. just in time for his next surgery. Ugh. I know it could be so much worse and we are grateful that it's not. He's doing great considering what he has been through.
On day 4 post op, the nurses and attendings said they like to see the post op patients up and walking around. It was a punch to the gut. Owen wanted to do nothing more than sit up in bed for 15 minutes here and there. I had to quickly remind myself that this is Owen we are talking about. Mister laid back who rarely is on the move. I explained to the docs that he just started walking three weeks prior to surgery and how I wished that he had the energy to get up and walk around. So when Owen wanted to pull to a stand last night, even for a few seconds, I was thrilled!!
Owen has been a bit emotional lately. I know it's perfectly normal for post op patients to have changes in behaviors and so I am just taking it as it comes. Little things will set him off and his eyes fill up with tears. It's heartbreaking.
Another thing he's dealing with is not sleeping soundly. He talks in his sleep "no ouchies".. "leave e alone".. "mooovvveee over"... and he tosses and turns a lot. I wish I could tap into those dreams and sprinkle them with happiness.
I know that these things are normal and they will get better.. just in time for his next surgery. Ugh. I know it could be so much worse and we are grateful that it's not. He's doing great considering what he has been through.
Puking has been another small obstacle along the recovery path. Owen is still not tolerating his full feeds and when I go up (ever so slightly) he pukes. I called GI to make an appointment but they can't get me in until May. I'm not kidding. Owen's pediatrician sent a script for Prevacid to help with the reflux and said to stay away from her office because it is not pretty right now.
We are looking forward to a great weekend with lots of rain and a little sunshine. We'll hit up Redbox in a bit and maybe work on some Easter crafts!
4 comments:
Oh buddy, keep up the great recovery! You are such a star, two weeks post-op! We continue to think of and pray for you!
That really is heartbreaking that he is having bad dreams like that! Sad! It's sad when any child has to have surgery but I think it's much better when they are infants, they can't verbalize with words what they are thinking so it helps a bit.
So glad to hear he is starting to bear weight again. I can't even imagine what it would feel like to have an open heart surgery and then trying to move! What an incredible little guy!
I have so much respect for your family. What you all have had to endure over the past few years is more than most families go through in a lifetime. And yet you remain so positive. You are an inspiration. I just want to hug Owen, he is such a trooper. What a tough little guy!!
I am so happy to hear Owen is recovering so great. I know this had you so worried as any parent would be to have their children endure all this. I think he is such a hero to me. Continuing to keep you in my prayers.
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