For the first time in Owen's life, he will not be eating while he sleeps. While this concept seems obvious to most of us... Owen has never had an empty tummy all night long. For the past 2 years, I have filled up a bag with formula, hooked him up to an IV pole and the pump feeds him all night long. I think it's time that we call it quits.
I think I figured out a way to get 1300 calories in his tummy throughout the day. I start at 7:30am and feed him 2oz every 30 minutes until 10pm. Don't be jealous. I don't really need a life. :)
I mix up 5 different blends of food throughout the day. I set the timer every 30 minutes, so I don't forget, and then it's time to inject. I can push a 2oz syringe pretty quickly, so Owen can be free to play. No more leashes to a pump. How awesome is that??
This is just another small milestone. I'm excited to see if he's interested in breakfast after waking up with an empty tummy. I plan on letting him get used to the new feeding routine and then I'll work on maybe feeding him 4oz every hour so that I'll have a break.
Owen is really working on his Gross motor skills and so his oral eating is at a standstill. He nibbles all day long and is still totally interested in all foods.
Speaking of Gross Motor skills... he is pulling up on EVERYTHING, climbing, standing with no support, and has figured out how to get out of bed and off the couch. We continue to be amazed.
Thursday, April 15, 2010
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6 comments:
Wow Owen, look at you go!!!
I won't be the least bit surprised if he wakes up in the middle of the night because he's not used to an empty tummy...I'll bet you're right, he'll be good & ready for breakfast!!!
You are so funny...you don't really need a life!
Keep us posted, hope this works out well!
Good luck with the day feedings.
I know the feeling we have the same way. Take care!
Go Owen! Sounds like some great progress!
Cxx
So wonderful. I hope the change in the night drip is what you need. Hooray for Owen. How is the change of the GI doc going?
Awesome! Way to go Owen!!
Can't wait to hear how it goes!
You're are amazing, friend!
Love~ Rebecca
Hi! First time commenter! I found my way here through Patrice's blog when she mentioned your blended diet. I bookmarked you because I'm excited to see how this goes. My son is 100% tube fed due to a nerve abnormality that causes a gastric arrhythmia. It's a really rare dx and boy did we work our way through some peds gi's which it seems you understand. I've recently thought about the steps to take to help train his stomach to process actual food. I'll be watching and learning from you, so thanks in advance.
In a weird similarity, I had some pump issues last night and had to turn of my son's pump after only 65mls. I was shocked at how soundly he slept despite not having food in his tummy. He woke this morning without gagging and tolerated his morning feed better than he ever has!
We also share pcos in common. It stood in the way for years and after 2 ivf's we were finally blessed with our son. Now, 2.5years later we have been blessed with a surprise baby they said we'd never have. I look forward to following your journey. Thank you for sharing. ~Nicole
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