Happy Monday & Liver Results

I received a call from the GI team at LPCH and they received the results of Owen's labs. His numbers have come down, and they admitted they weren't super high to begin with.  They just wanted to be sure that he didn't have an underlying liver condition before proceeding with a heart transplant.  The good news is that we got the go ahead to move forward with listing him. 

A few minutes later, I spoke with the NP in the cardio clinic at LPCH.  She sent a message to Owen's cardios and they will meet on Friday at transplant clinic to make the final decision to list him.  They also need to discuss when to start and frequency of IVIG {Immunoglobulin Infusions}.  We haven't yet heard back from Boston on a 2nd opinion, but I expect to in the next week or so.  I supplied them with a lot of discs and medical records so it does take time. 

In the meantime, we are enjoying our last week of summer vaca with Kam.  I am working on a little Mommy curriculum to work on at home with Owen since Preschool is not an option while he is staying healthy and waiting for a heart.  I also need to do potty training boot camp with Owen.  He is so darn stubborn!  I know with Viagra 3x a day and lots of diuretics, it's not going to be easy, but we are going to give it our best shot.. again.

Speaking of Sis... doesn't she look so cute in her jammies and bed head?  I know she'll love me for posting this.  She is up on her crutches and the swelling is slowly going down in her foot.  The pediatrician's office said they are backed up and are not sure if they got the final radiology report from Phoenix Children's yet, so still no word on if she has damage or just a sprain.  We continue to ice, elevate and keep her off of it. 

Wednesday is the day we get to check out her new Jr High, get her schedule, buy her PE uniforms and school ID.  It'll be fun.  Owen can't wait to "check out her new school because I'm going there soon."  Or.. in like 9 years. 

Happy Monday.

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A Fall Down the Stairs

We spent Friday at Big Surf with the kids' cousins.  We had so much playing in the surf, riding the slides and splashing in the pool.  It may have just been our last splash of summer before school starts in about ten days.  Then again, we may just sneak in one more water park before then. 

We were wiped out, and all slept in until 10 this morning.  Totally unheard of around here.  We had a full day of relaxing planned, but Kam wanted to shake things up.  She was coming down stairs and I heard.. Thump thump wack.. followed by a scream.  Her ankle was twisted and swelled up the size of a baseball in about 30 seconds.  I carried her to the couch, elevated her foot and got it iced. 

An hour later, the swelling was just getting worse, but at least the Advil kicked in.  I ran her to Phoenix Children's Urgent Care for an xray.   They said there could be "possible fractures" but we won't know for sure until the radiologist does a final report and so I'll call tomorrow to get those results.  In the meantime, they gave her a air foot brace to keep her ankle stabilized and she got her first pair of crutches.  The nurse was a bit intense and wouldn't let us leave until Kam received and passed her crutches training.  She then gave us a lecture on flip flops.. seriously.. this nurse was off her rocker a bit. 

We got out of there after 90 minutes and headed home.  

Kam is home and laid up in bed.  She is keeping her foot elevated, iced, and we are staying on top of the Advil.  She is so bummed that she can't dance this week and I'm just hoping there is no serious damage done.  She gets to go to Junior High days this week on crutches, poor girl.  

Tomorrow we had big plans to finish our school shopping, but it looks like I might be shopping solo.   Such a bummer and not a good time, but Kam is young and strong.  She'll be back on her feet in no time! 

Mister Owen

There is no way for me to describe how hilarious Mr. Owen is.  He has us laughing all day long!  I was trying to get a quick photo of him this morning and these are the shots I loved out of our thirty second photo shoot.

This is his "look how sad I am" face when he really wants something and you say no.  Sometimes he can't get his bottom lip to stick out far enough so he'll roll it with his fingers.  Cracks us up! 

Oh his smile, laugh, and his swagger... we just adore it all!  I always say that Owen doesn't have a filter and the things that come out of his mouth.. seriously.. we are in so much trouble. :)

Look at that missing tooth.. I just love that smile!  How do you like his super cute Incredible Hulk tee?  A fellow blogger made it for him and he just loves it.  Thanks Jessica.  He was laughing so hard in the picture.

For the best face of the day.. I Love it!! I just can't help but laughing when I see this picture.  It shows his personality perfectly.  Such a goof ball!! 

I spoke with cardiology at Stanford yesterday and we are all set to go back in September.  We discussed starting his IVIG infusions, but more on that later.  We are still waiting to hear back from Boston on a second opinion and the liver specialist at LPCH so we can get him listed for his new heart.  Doesn't he look great though? 

We are just sitting back, unwinding and enjoying our long summer days.  I will be posting pictures of the kids bathroom that we recently redecorated on the fly.  It was a cheap redo and we all love how it turned out.

Oh.. my sister found out she is having a baby girl at her ultrasound today..so excited to have another niece!!  Maybe having another baby around will help curve my baby hungry craving for a bit.