Happy Monday & Liver Results

I received a call from the GI team at LPCH and they received the results of Owen's labs. His numbers have come down, and they admitted they weren't super high to begin with.  They just wanted to be sure that he didn't have an underlying liver condition before proceeding with a heart transplant.  The good news is that we got the go ahead to move forward with listing him. 

A few minutes later, I spoke with the NP in the cardio clinic at LPCH.  She sent a message to Owen's cardios and they will meet on Friday at transplant clinic to make the final decision to list him.  They also need to discuss when to start and frequency of IVIG {Immunoglobulin Infusions}.  We haven't yet heard back from Boston on a 2nd opinion, but I expect to in the next week or so.  I supplied them with a lot of discs and medical records so it does take time. 

In the meantime, we are enjoying our last week of summer vaca with Kam.  I am working on a little Mommy curriculum to work on at home with Owen since Preschool is not an option while he is staying healthy and waiting for a heart.  I also need to do potty training boot camp with Owen.  He is so darn stubborn!  I know with Viagra 3x a day and lots of diuretics, it's not going to be easy, but we are going to give it our best shot.. again.

Speaking of Sis... doesn't she look so cute in her jammies and bed head?  I know she'll love me for posting this.  She is up on her crutches and the swelling is slowly going down in her foot.  The pediatrician's office said they are backed up and are not sure if they got the final radiology report from Phoenix Children's yet, so still no word on if she has damage or just a sprain.  We continue to ice, elevate and keep her off of it. 

Wednesday is the day we get to check out her new Jr High, get her schedule, buy her PE uniforms and school ID.  It'll be fun.  Owen can't wait to "check out her new school because I'm going there soon."  Or.. in like 9 years. 

Happy Monday.

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