Less than 48 hours and we are home again. Owen had another monthly biopsy and things looked great! His pressures are 2 with a wedge of 7, his echo looks great and he is gaining plenty of weight. We got the blessing of our team to remove his gtube and he is totally thrilled, but nervous at the same time. Owen is the best travel buddy and just goes with the flow. We were at the hospital bright and early on Wednesday and his biopsy went really well. We had an impromptu transplant clinic in the surgical recovery area after his echo. He ate his body weight in saltines while waiting for discharge.. he was starving. All his labs looked great and we were excited to break free.
We always make our rounds and visit the nurses at the hospital. We visited Cam in the CVICU and he is still fighting so hard and even smiled a few times. We called Janesa as we left the hospital and headed into San Fransisco to play. My sister in law did my makeup and showed me how to apply it so I look amazing.. then I pretty much bought everything in her MAC store. We ate salmon salad bowls on Filmore street and then headed back to Palo Alto. It was just what I needed.
We headed back to Palo Alto to have dinner with Nicola and the girls. Then Kip came by the hotel lobby to chill with us for a while. Owen loves to hang with the 20 something crowd and chat about video games. We got to bed late and were at the airport bright and early.
Now for the not so great news.. Rejection score came back a 1B again!! Seriously.. it's so frustrating. He's doing great otherwise and I am choosing to stay positive. The team will discuss him today and let me know the game plan.
(This is the hotel elevator and it's tinier than a closet. Owen needed a snack late at night so we took the old creepy elevator down to the lobby.. eek)
Back home..
Little Logi got to chill with "Missy Sussy" for the past two days. Parks, Zoo and he was spoiled rotten. Kam and Carson held down the fort and I am so grateful for all they do. As we walk the halls of the hospital I feel proud of us.. proud that we made it through the toughest year ever. Every corner we turn there is a friendly, familiar face and I am quickly reminded of how we did it. Feeling grateful and blessed.
1 comment:
Prayers for that 1B! That's so awesome that you were given the green light to take the g-tube out. Owen will be totally tube-free for the first time ever and that's so exciting! He's looking so great.
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