Four years ago, we kissed this little boy goodbye as they wheeled him into the operating room. He had a half a heart (HLHS)... it was failing and we were maxed out on oxygen and meds (iv milrinone) After waiting 327 days on the transplant list, my little blue boy would finally have a perfect heart and be PINK. Thanks to the most precious gift from Aly's family, Owen was given a chance to LIVE and be healthy. We had no idea what was in store for us over the next four years.
He had a fantastic 18 months post transplant with no rejection, and even attended first grade. Then it was a ripple effect of biopsy negative rejection, ECMO, coronary disease, cardiac arrest and 10 months inpatient waiting for retransplant. We have felt every emotion from guilt to grief and then gratitude for the wonderful 3 1/2 years we got with his first gifted heart. Thank you to Aly's family for saying yes and for giving us many memories with our sweet Owen.
4 comments:
Such an incredible journey. It's been amazing and inspiring to witness it. Thank you for sharing!
Such an incredible journey. It's been amazing and inspiring to witness it. Thank you for sharing!
Such an incredible journey. It's been amazing and inspiring to witness it. Thank you for sharing!
Owen is truly a super hero, and so are you as his family! His fight, determination, and you'lls faith is so never waivering. We have a local family who could use some of your knowledge and faith right now, their three year old little boy, Colby has heart surgery last week and is fighting really hard right now. I would like for you to read his story on FB Colby's Courage, his mother's name is Whitney Babcock and Colby has a twin brother also. Thank you for sharing are I am so proud to following your journey. A friend in East Texas, Pam.
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