We have been offline most of the week to just unwind. Trying to de stress as much as I can as hospital living is extremely stressful. Owen has been doing great and staying healthy. His WBC is at 1.7 and his ANC is down to 300 (anything under 500 is neutropenic). His echo showed no major changes... mod/severe dysfunction... but not worse. We have been hibernating a lot to avoid exposure to all the nasty germs. Every room in the unit is full of rsv, flu, and other viruses as we are getting the brunt of the PICU overflow. They have attempted to move Owen into a shared room on a few occasions and even at 2am.. I have continued to resist and advocate. I have offered alternative options for Owen and the topic will continue to come up. No one wants to be in the hospital, especially with an immune compromised child, during the winter months.
Nutrition and lack of endurance has been an ongoing issue. We have to go for daily walks for therapy. Owen always masks up and we don't touch anything! We keep creeping up on his calories but he is still the same weight he was when we were admitted in October, which was down 8lbs from discharge in Sept. The struggle is real.
Since we are isolating ourselves... we play card games, build Legos and plan his bday party in two weeks. If anyone has any bday in the hospital ideas.. Please Share!!!
Back home... Logi has been a busy body. I miss my kids like crazy. So grateful for FaceTime and planning their next trip to Palo Alto!
Kam is prepping for SATs and we are researching the college application process for the fall. Carson is working hard and keeping everyone fed and happy!
Love from Palo Alto.
7 comments:
Fortunately I've never had to plan a birthday party in the hospital, so my heart goes out to you. I'm sure you have heard of Icing Smiles, but if not here is the link to their website. https://www.icingsmiles.org/receive-smile/ You can request a cake for Owen. I think they might require 4 weeks notice though, but it may be worth looking into. Hang in there! Good job for being such a great advocate for him.
Always amazed by your strength! Good to see Owen smiling. I would love to send him a birthday card. Is your RMH mailing address still the same?
I keep Owen in my prayers. Every night the Lord and I talk and Owen is a big part of our conversation. You are never alone and someone is always praying. Love to you and Owen
Hi Andrea! Has Kam looked into a BA/MD program? It's an advanced program for people that know they want to do med school. Students complete an BA program and go straight to med school (no extra applications). I know of two- the University of New Mexico and University of Missouri Kansas City- and know people that have done both. There may be others!
Here's a link with more info. http://blog.prepscholar.com/ba-md-bs-md-programs-list
It seems as though she could be a good fit. :)
Good luck!
Praying for you guys! The picture of Logan and your dog just melts my heart! We have a beagle and she is the sweetest little protector of our medically complex/fragile son - their relationship is precious :)
Not our soggy..Logi thinks it is. My sister in law watches Logi for us during the day and he and Sam have quite the bond!
Icingsmiles make exceptions for children who are hospitalized- a 4 week notice is not required. However I would apply asap to make sure you can get Owen a cake.
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