Spring break is over and we are back at the daily grind. I'm so happy we didn't travel for break and it was nice to just relax and spend time together. Owen was so excited to have Gigi over for some Minecraft fun and they didn't move from this position for at least 2 hours.
The weather has been so perfect and I hate to be inside.. so we spent plenty of time at the park.
Owen had his monthly echo and visit with our AZ transplant team and everything looked the same. His Stanford Transplant team have been talking about Owen the last week and a half and decided to put a hold on listing him for transplant. So that's great news!! We started him on a different immunosuppresent called Sirolimus and research has shown it can help slow down the progression of Coronary Artery Disease. It's not a guarantee, but worth a try. He has had some yucky side effects since the change and labs have been even more frequent... really hope it is worth it in the end.
A huge issue is his poor growth. He hasn't gained a pound in well over a year and hasn't grown. Despite my giving him 1800 calories of blended food in his Gtube and orally eating like a champ, he averages 2300 calories a day. It's still a battle to gain and he gets tummy aches because it's just so much food!
His liver is acting up and labs are very elevated. We are going to keep an eye on them (more labs) every two weeks and hope they start trending down. Otherwise.. we will be adding another specialist into the mix.
Overall.. things are okay. He is excited for his next biopsy on May 2nd and is always busy picking out his next lab toy. :)
Owen had his dental cleaning/xrays last week and did great! My kids are winning with a record of no cavities ever. Thanks to good genetics I suppose.
On Tuesday we met my dad at Barrio Queen in Downtown Gilbert for Taco Tuesday. SO GOOD!! It was fun to spend some one on one time with Grandpa Boom.
Daddy had a few days off midweek so we took the kids to Zootopia. I was super worried this little monkey would be a crazy in the theatre. He was so great and slept most of the time. Afterwards we let them ride in those germ soaked kiddie quarter rides outside the theatre. Owen was terrified in the back of this little plane and jumped right out. Logi loved it!
This was the fountain where Mr Logi fell, skinned his knee, smashed his lip and then did it again.
There have been so many new restaurants built in Downtown Gilbert's Heritage square we have been wanting to check out. So on Daddy's day off, we headed downtown for some fish tacos and ice cream. It was fun to just sit on the patio and talk. Kam is always super talkative, Owen says the most outrageous things and Logi likes to play with everything on the table. Owen and Logi has never been to a library before (gasp! I don't like reading) and so we took them for the first time ever. The last time I had used my library account was in 2006. We walked around the kid section and Owen didn't want a single book. He had already picked out a World of Warcraft book with Daddy and that was good enough for him. Kam had to get books for Honors English (boring) and I was happy to check out with two book (less to take care of) and go. Maybe we will be back in the next 10 years.
Owen had been begging me to let him go to a movie by himself. I let him go with Kam to see Zootopia again on their own this time. He felt pretty awesome going sans parents. Apparently it's not cool to go to the movies with your parents at 8. Glad he has a cool sister to accompany him.
That was a wrap on our Spring Break. Only 8 weeks until school is out for this 2nd and 10th grader!
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