Friday, July 24, 2015

Summer Vaca Coming to an End

This is the end of summer vacation as we know it. We have been prepping for Back To School... you read that right.  It almost seems cruel to send kids back to school in July when it's 110 degrees out.  Owen had his "Meet The Teacher" night last night and when asked if hew as excited to start school... "I am one thousand and twenty four percent NOT ready to start school."   Owen is starting off low key for 2nd grade, just going for three hours in the mornings, and hopefully we will get homebound set up soon to get one on one at home in the afternoon.  The last thing we want to do is over stress him right now. 

We had our annual back to school lunch this week with my Mom and Sister.  The kids picked NYPD pizza this year and thankfully we went when it wasn't busy.  Logan is at such a fun age and he sat in his high chair for the first time.  He was thrilled to drink his ice water out of the straw that the waiter brought him and nibbled on his baby puffs.
Then he took a nap the rest of the time.  He loves to nap on mommy or Kam.  She is getting all the snuggles in that she can before she has to go back to High School on the 5th.
Bridgi gets to stay in preschool.
Gigi is in Junior High.. seriously... 7th grade.  Liv is going to be in 1st grade and Lucy (who was with her mom while we were at lunch) is going into 2nd grade.  Liv and Owen were wresting in the booth after gobbling up their pizza.  Glad we had the place to ourselves.
Earlier that day we had a followup with Owen's local transplant team.  His echo continues to look the same.  He tolerated all his med changes so far.  I have doubled his dose of Carvedilol (beta blocker) and his HR is finally dropping just a tad.  I get excited when I see his HR in the 140 range.  We switched from Enalapril to Lisinopril (once a day).  His Lasix and Aldactone are status quo.  We are dropping the Steroids at a steady pace and he should be off of them by September, which could be a bit risky.  The biopsy in October will be telling for sure!  His weight is still way too low, so I continue to pump him full of calories and hopefully the scale will slowly increase. 
We did get out to see Antman because Owen had it on countdown since his friend from Marvel came to visit at the hospital.  It was pretty darn great and Owen LOVED it!!  If you haven't seen it, you should.  Logan was a rockstar and watched the entire movie.. quietly while playing with chewing on straws.  Best baby ever.

We have one weekend left of summer vacation.  It has gone by way too fast, but we have plenty of breaks and vacation coming up before we know it.  Kam is studying and trying to pass the test to get her drivers permit.  It's going to be weird having her drive home from school pickup each day.  Eek.  I thought I had gray hair from Owen?  Good thing Gray is the new trend.

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