Fetal Echo and Transplant Clinic

Nothing could have gone better today!  The morning started out with a breakfast at the hotel, followed by more breakfast at the hospital (Owen needed his protein fix).  My fetal echo was long and Owen had his echo in the room across the hall.  I heard him chatting with the echo tech the entire time... we were laughing. 

Baby looks totally normal.  The structure of his heart is perfect, his function is great and there are no concerns.  We were advised to plan on having an echo performed at the hospital prior to being discharged at birth to double check everything, but it appears this baby is perfect!  This little guy was flipping and flopping the entire echo so it took much longer than normal, which may have had my nerves on edge.  It's usually not a positive thing when it requires multiple echo techs, followed by a cardiologist to get images.  I thought for sure they saw something awful and kept looking to confirm it.  PTSD much? 

Owen's echo was followed up with transplant clinic.  His heart looks beautiful as well.  His labs were right on target and we even got the go ahead to kick his Steroids to the curb in the next few weeks!  No more steroids!!!  When those are gone, we can ditch the Bactrum and blood pressure meds as well.  That will leave him with Asprin, Cellcept, Prograf, Diltiazem, and Omeprazole.  For the first time in his life he will be on less than 9 meds!!  He will be on these five meds FOREVER, although I may get brave and ditch the Omeprazole soon.  We will also be adding some vitamins as he is orally eating mostly on his own, so we will need to do some supplements.  We will also have to add a statin at some point to help prevent the progression of Coronary Artery Disease.  

In October, we will return to LPCH for Owen's annual biopsy where they will check all his coronary arteries and check the stent in his SVC.  We will also check his DSAs (donor specific antibodies) to make sure they are still at zero. 

We feel extremely blessed by all the good news today! 

Owen and I visited his LPCH school today and he showed off for all his teachers. He had a great time on this trip and can't wait to come back in October.  He keeps telling me how great these trips are.  I love that he is so comfortable with HIS life and his normal. 

Thanks for reading and keeping us in your prayers!!