Good News and Summer Fun

Our first week of summer has been relaxing and so far the triple digits aren't phasing us one bit.  I received a call on Monday with some fabulous news from our team at Stanford.  Owen's antibodies came back ZERO after his last IVIG so we can stop all infusions for now.  Two years of infusions and we finally get a little break.  We will continue to draw his antibody labs monthly and ship them off to LPCH to be tested.  If we see an increase in antibodies we will have to go right back to his monthly infusions, but even if we can get a couple months off, we'll take it! 

We also decided to change one of his major anti rejection meds from Cyclosporine to Prograf.  I'll switch his dose on Saturday and I'm totally nervous about it.  We'll have weekly lab draws and an echo next week to make sure it's at a therapeutic level and not causing rejection.  The med now causes hair growth, gum overgrowth and he's having harsh skin issues.  The hope is that all these nasty side effects will subside with the new med... with a side effect of hair loss.  No more back hair.  We kept Owen on his steroid dose until we get through this med change and we'll make sure everything goes smoothly with his biopsy in a month... then I'm really hoping we can stop the steroids. Overall.. no complaints.. we have been so very blessed with how well Owen has adapted to his new heart!

We have been swimming to stay cool and had cousins over yesterday for an extra dose of fun!  I've been teaching Owen how to swim and he's already holding his breath for a while under water, swimming to the side and finding the wall and will swim to the step on his own.  He's going to be diving for rings at the bottom of the pool soon.  For now, he's just as thrilled to throw the rings in for the girls to find. 

Gigi, my mom, Sis, Nana and all the little ones were swimming too, but I was too busy watching kids and didn't take too many photos.   It's so fun to have Kam home for summer... she is so fun to have around all the time! 

Most summer days you can find us relaxing in the family room.. Owen naked and playing with toys or on his WiiU.  Kam dancing around the house listing to Pandora on her iPad or watching Anime in her bedroom.  I'm cleaning house, fixing meals, doing laundry or making a million phone calls.  It's a good life friends.