Crazy Dayz

I am publically apologizing for my lack of blogging.   I love it so much and life is just crazy right now.  Like ridiculous, can't catch a break kind of crazy. 

I spent the whole of last week meeting with people from the school, talking to nursing staff, and getting paperwork together for Owen to attend school.. who knew it was so much work?!  I finally have all my forms to fax to Stanford to have filled out and faxed back.. then we have a final IEP meeting and hopefully he will get a few weeks in of Kindergarten before he will be a Kinder graduate!! 

Owen went to the park with Daddy almost every night this week because it's been sweltering in the day... 99 degrees on Friday.  Guess who was so brave and went down the slide all by himself for the first time ever?  He climbed up and slid down over and over again!  We were so proud, but no one was as proud as Owen himself.  It's so great to watch his confidence soar!  He still gets intimidated on some play structures, but is getting brave!

Friday night was so hot and Kam had AllStar pics for dance.  Owen and I sat in the airconditioned car and watched the girls smile and sweat.  Love this pretty girl and it may sound totally selfish, but I can't wait to have her home all summer with us!!  Not before she finishes out the last of her Junior High years as a rockstar! 

Saturday, we had another Heart Mom Brunch and it was a great time, as always.  I love these girls so much. 

Sunday we watched a little Captain America and it was SO good!!  You have to go see it!  Owen was in superhero heaven and grabbed my arm every so often when someone was caught off guard in the movie. 

We are all totally excited for this little gem of a movie coming out in May!  Owen loves to take pictures in front of movie theatre posters.  Kam.. not so much. :)

Bring on another week.  I am exhausted from last week.. Kam was sick, I spent most of the week on the phone or filing papers, our taxes are finally done and I feel not so overwhelmed this week.  We kickstarted our week with LABS!! Oh yes.. so fun.  Owen did say.. "I liked this lab better.. they used the smaller butterfly needle and it didn't hurt as bad."  We stopped at Circle K for a $.79 polar pop and then at the school to pick up more forms. 

This week... plan our next trip to Stanford in May for IVIG... not feeling like having another PCH visit anytime soon.  Owen had a nasty reaction last time to the brand of IVIG they used... we'll just avoid it all and jump on a plane for his 12 hour infusion.  We have to get all the forms into the school with instructions to stay hydrated and any other restrictions that I can't think of right now.

How is your week??