Midweek (totally) Randoms

I have some catching up to do...

I love this picture.  We took the kids to see the new LEGO movie this weekend.  It was pretty "Awesome" according to Owen and the rest of us loved it too. "Everything is Awesome....." (Sing along if you saw the movie)

Owen loves getting his picture taken in front of these movie signs.  He made us take his picture in front of Robocop, Captain America and Spiderman 2.  I think my little guy likes action movies.

We have been busy.. so so busy.  Kam had dance auditions at the high school this week and we still don't have results yet.  Owen has been busy with therapies.  We also had a pre-IEP meeting at the school following an eval with the Kindergarten teacher.  Owen is testing just a smidge behind the other Kindergartners on the reading and phonics, but is spot on for Math.  YAY!  We have been working hard and it's paying off!

We are waiting for speech, OT and PT to come evaluate him and are talking about adding more time to his homebound schedule.  Four hours a week is just not enough to fit in an entire common core Kindergarten curriculum.  We do our own homeschooling curriculum at home, but I also want him to be exposed to common core so when he does go to school it's not so foreign to him.

Today we got in a little crash.... eek.  It was my fault.  We were on our way to PCH for cardio clinic and the kid in front of me slammed on his breaks.  I saw it happen so I swung right and up the curb to avoid the impact of the crash and just scraped his bumper.  Just enough to shake us all up, and cause a headache of dealing with insurance companies.  The s never did show up.  We exchanged info and we made it to our cardio appt.  I'm sure the curb was fine as well.

Owen's echo looked good.  Still some higher pressures in his SVC, but it's been stented since October.  I'm sure they'll measure pressures at our next biopsy in April.  Owen's Keratosis Pilaris is flaring up so we got a referral to go to a dermatologist. Owen has had a higher voice ever since transplant and coughs often when drinking fluids.  He has a barium swallow study set up for Tue with his feeding therapist at PCH so we'll see what shows up.  If he is aspirating, even if he's not, I'm going to have him see an ENT at Stanford to check out his vocal cords to ensure there is no vocal cord paralysis from transplant.  I have a sneaky suspicion that he's totally fine, but that may just be denial too.

Aside from all that... Kam has a dance convention and competition this weekend.  I need to go find a body shop and rental car.  We have IVIG in two weeks at PCH (double ugh).  I have been having fun trying out new classes at the gym... Hip hop, Pilates, Zumba, Tabata...I even tried to cycle the other day (horrible).  My fave is Hip Hop...hands down! I'm hoping that one day I'll see my efforts paying off. :)

Oh.. I almost forgot!  It's TUBE FEEDING AWARENESS WEEK!  I'm working on a post for tomorrow!