Biopsy Results

We were finally discharged at 3am this morning and back to the RMH to catch a few hours of sleep.  Owen is unusually crabby today, which is super awesome.  The combination of IVIG, anesthesia and lack of sleep just don't make for a happy kid.  I feel a little like a zombie myself, so I get where he's coming from.

We met up with Subrina and Chase at CPK for lunch. Love having friends that have walked this path before us.  Chase is Owen's buddy from home, also HLHS, and had his transplant at LPCH about 18 months ago.  He is having pretty high cellular rejection so keep him in your prayers.  Wish I had a picture of the silly boys from lunch, but Owen was not having it.  It was a fun afternoon and I needed that!

Owen's biopsy results came back as ZERO {cellular} rejection once again!!  We are doing the happy dance and are so grateful!  We won't have his AMR (antibody rejection) scores until Friday at the earliest and the end of next week for the IVIG antibody results.  Praying that his antibodies have dropped and the IVIG is really effective.

I have started working on getting Owen's therapies scheduled back home for October.  I also need to get his Kinder registration done at our home school so we can get a teacher lined up for home schooling in the fall.  The risk of getting sick during RSV/Flu season is not worth it. 

Trying to stay positive each day and keeping our eyes on the big picture.  We are both exhausted from all the appointments and I can't wait to take Owen away from all of this.  I want him to just have a chance to be a boy!  A break from all the doctors appointments, biopsies, infusions... he has earned that.