GI Appointment

I got up early this morning, by 6am and it felt great. I got breakfast prepared, dishes done, and we were ready for school with time to spare. Owen had an appointment with Dr M. for GI this morning, but Dr M called and said he was sick. He was in the office for just the morning and wanted to know how Owen was doing. I told him about the puking that has returned with a vengeance. Owen has been burping a ton and always complains about his "sick tummy". I feel so awful for him. He hasn't wanted to be fed because it makes him feel crummy and when I push his calories, he pukes. It's just an ugly cycle. We agreed we would keep our appointment time, but just not have an 'actual' appointment.

My calm morning turned crazy when Owen puked twice while I was talking to Dr M. on the phone. That's when I stopped to look at the fridge and saw this... it seriously made me smile so big!!

We dropped off Kam at school and headed to the doctor's office.  Owen had a weight check since he hasn't tolerated even close to his calorie goal since his cath.  The fantastic news is that he has continued to GAIN weight and is at 34.5lbs.  He doesn't look puffy, so I'm thinking it's muscle, or "real" weight, not fluid retention.  We talked to Dr M. from his office, across the room, and he even wore a mask to keep Owen away from germs.   Owen is still in the 25% for growth.  We decided to go ahead and do a tummy xray to rule everything out.  I'm waiting to hear back on those results. 

We received our itinerary from Stanford.  I'm really curious about the Pyschosocial Eval.  He's never had one and I have no idea what that is.  I'm picturing ink splat pictures and Owen telling them he sees evil villains being defeated by his superhero powers with big giant swords.  I'm sure his imagination will be 10x magnified after seeing the new Avenger movie!! :)

Today is Kam's last day of school for the week and we are excited to get in the pool for the first time this year!!  I'm off to find a rental car for our trip, secure a portable oxygen concentrator and double check the insurance authorizations.  Happy Tuesday!!