After a couple months of waiting for the cath lab to open up their summer schedule, we finally got the call with dates. Owen will have his Cath and MRI on July 28th! This is going to be a lucky day because Owen will be exactly 3 yrs 6 months.. to the date. Ok, so it's not really a significant date, but I am choosing to be optimistic.
Owen has to rock this appointment! His echo has to look good.. no surprises. The cardiac MRI has to show mild to normal function. His tricuspid valve has to show mild regurgitation, showing that his TV repair in February was indeed successful over time. The cath has to show great pressures. Then... and only then.. will we get word that the Fontan is possible. I am so optimistic. Cautiously optimistic.
Transplant has been the only option for so long... so the idea of Owen having a successful Fontan is exciting! I can't even imagine his little cheeks tube free.. it's been forever!
So we will travel to Stanford at the end of our summer. Maybe we'll drive up the California coast and enjoy the beach for a few days on our way. We might fly and spend some time in San Fransisco instead. It's time for this momma to start planning.. it's what I do best.
If we get the go ahead from Dr Hanley, Dr Rosenthal and Dr Stock to move forward with the Fontan... we will have a quick turn around back to Stanford. I want to get him in for surgery before August ends. I don't want him in the hospital during the icky respiratory season and he isn't in a position to wait until the Spring.
It looks like we better have some serious fun over the next three months of freedom. Lots of swimming, movies, bbq's, family time, ball games, and lazy summer days cuddling on the couch. Life is so good!!
Friday, May 6, 2011
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1 comment:
Yea! Ok, now we have dates to add to our prayers! I'm sure it's been driving you CRAZY not having those dates. I know I would have been going nuts!! :)
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