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Owen KNEW he had been in this cath lab before... look at his face... poor guy..JPG)
The cath went as planned. They were able to coil off at least 1/2 of the large collateral that they meant to tackle. Then they ballooned open the narrowing from the Glenn site. In the cath lab, it looked significantly better... the echo this morning showed the same. Dr. Lamers (cath cardiologist) said that Owen's right ventricle should get the blood, squeeze it, then shoot it off into the body... Mr. Owen likes to do things his way. His right ventricle takes the blood, squeezes it ever so lightly and then it regurgitates back into the atrium.. thanks to his leaky tricuspid valve.. the leftovers go to the body. We are all amazed that he is so pink, chunky and strong on the outside!
We finally hit the sack at midnight. Owen tossed and turned, but we got enough sleep. Have I mentioned that we got the best PICU room? They are all private rooms with a little bed so I never have to leave his side.. but we have our own bathroom! That means I don't have to wake up at 3am and wander the halls of the hospital looking for a bathroom. I'm finding joys in the little things here..JPG)
Owen was up at 5am and ate 2 cups of ice chips and a whole carton of milk!! Back to sleep until his 8am echo and now he's been snoozing ever since. He's currently getting his IVIG treatments over an 18 hour drip. Lets see... that puts us at 4am tomorrow he'll be done. Or so I thought...Looks like he needs another 18 hour dose. Maybe we'll be home on Thursday?
I spoke with the cardiologist on call last night and he said the treatments are every SEVEN days.... NOT 21 days. BUMMER. If that's correct, then we'll be back here next week again. Then home... then back 20 days later.. then 7 days after that and then on day 44 we'll check his antibody levels. The cycle continues until he gets a heart....Good thing we like it here.
7 comments:
I'm glad they were able to make progress while they were in there.
I'll bet the staff over there is IN LOVE with Mr. Owen!!! Who wouldn't be?
I'm so glad that you "enough sleep" ...in hospital time I know that that means about 4 hours of broken sleep, but some how it's enough to get by.
Anyway, keep getting better little guy! We can't wait to see more pictures of your happy smile!
Good luck and the prayers never stop from me! Owen has touched my heart, and though he's only got half a physical heart right now, he's got more than that in another kind of heart!!
You have a beautiful son! He looks great! Its amazing how these babies hearts can be so poor and yet, they don't even show it!
Big hugs coming your way, and YAY for a private bathroom!
Love Krissy (Sofia's mom)
SILLY babies, Kylie didn't like her IV's either and yes they have no luck in putting them back in. I hope things get better. I am sorry you have to be at the PICU, you don't get sleep and it is oh so sad there. I can't believe how HAPPY Owen looks. I will keep you in our prayers. Chrissie
God is good! I am so glad the cath went well...Owen is so strong! He has definitely figured this out by now though...his little face says it all.
I am so glad, too, that you're finding joy in being there...rooming in with Owen and the bathroom! You have to have that attitude to make it through!
Praying for y'all...and especially for Owen to be home for his 1st birthday!
Love to you all~ Rebecca
OOOOHHHH that Mr. Man is so cute I wanna smooch on his cute little cheekies... Yummy.... I really love the picture of him taking his snooze with snorty. We gotta make that costume for him this year for Halloween for sure. I am wishing you the best. You have the greatest attitude about finding the good and positive in everything, even a stay at the hospital. We just remember this is one step of many to him strong and better...Okay so if I can't be there to smooch on him, you give him an extra. And that cute girlie too...
Seriously . . . he is the sweetest/stongest lil' guy ever. He will be amazed at his pics and story when he is older and running around crazy just like the other guys!!
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