Tuesday, October 30, 2012

Pumpkin Carving Fun

We had a great time carving pumpkins tonight!   It started with picking out pumpkins after school and heading home for some gooey fun!  Owen wouldn't touch the seeds.. yuck.  I cleaned his pumpkin out in five minutes and it was kinda dry.  Gigi was freaking out that hers was disgusting.  She has sensory issues so I just told her to keep trying and then I took over.  It was the grossest pumpkin ever!!  The insides were like slimy, gooey, not your average pumpkin goo.  So gross.  We got it done anyway.

We jammed to some Pandora while we stenciled out our designs. This was the first year that Gigi did her own pumpkin from start to finish.    Owen was bored quickly, so I finished it up.
I tried the flour trick after the holes were poked and it made it so much easier to see what I was doing with the saw. Great trick!
After breaking FOUR saws and chopping the pumpkins with kitchen knifes, we got them done! First up is Gigi's bat.. she did great for her first pumpkin.

Kam attempted a super hard Wolverine and after we had no saw to cut, I tried my hand at it with a steak knife and it was a mess.  I think it looks a little like a swan. :)
Owen's pumpkin was none other than Spiderman.  This wasn't as bad as I was expecting and he loves it so much!
We are ready for Halloween!! 
 
Our prayers continue for those on the East coast.  I can't imagine being without power, no refrigerator for Owen's meds, no power for his oxygen concentrator, no way to blend his food which is his whole source of nutrition.  I can't even imagine.  Prayers.


** Go HERE and leave me a comment to be entered to win a copy of the new Tinkerbell movie.. "Secret of the Wings".

Monday, October 29, 2012

Cardiology Update

Owen had an echo and cardiology appointment first this this morning.  I am a little on edge lately, not knowing what the echo will show.  If anything looks "off" on his echo, I know that will mean an instant admission and starting IV cardiac meds. 

Last night, Owen woke up at 10pm and said he felt pukey.  I grabbed a Harkins theatre cup out of the bathtub and he filled it up to the rim.  I felt so awful for him, but he felt fantastic afterwards.  We chatted for a little while until he drifted back off to sleep.  I was worried for a quick second, that he may have caught a bug since we haven't been as isolated as we should be lately.

I was relieved when he woke up feeling like himself and was so excited to go see Dr Stock.  As soon as we enter the office, Owen is saying hello to everyone.  His weight was 36.5lbs, 42" and his sats were around mid 70s.  He was so excited for his "ecto".   We watched Spiderman for 45 minutes and he gave us a play by play of the movie as we watched. 

The echo looks unchanged.  So happy to hear this!  His liver is down to a 3-4, which isn't ideal, but nothing too concerning considering.  We are going to go ahead an stop the Viagra and see how he does.  We have two cardio visits in November, an IVIG infusion, and then to Stanford in December.  

We are just crossing our fingers, praying, and hopeful that his heart will come before he gets sicker.  Owen understands exactly what is happening, he likes to explain it to everyone that will listen too.  He is one smart little boy!!

We are off to buy a few pumpkins to carve tonight.  Our prayers go out to all of those on the East Coast.. be safe! 

Sunday, October 28, 2012

Fall Halloween Festival!!

Saturday night was our town's Halloween and Fall Festival. The girls danced last year on a tiny stage and it was really hot, so we didn't get to enjoy it.   This year, was totally different and we had a fabulous time!  The girls had to be there an hour early, so we just hung out and checked out the local vendors.  I am in love with the girls' new costumes this year.. love them!
Owen, while we waited, was apparently bored.  Ha.  Look at this face!
The girls both danced a couple numbers.  Gigi's competition piece is a spicy cha-cha routine and the girl can shake it.  Kam's piece is a stewardess routine and she has giant suitcase props.  Really cute.  Both girls did fantastic and I always get teary eyed when I watch them perform.  If you are a dance mom, you know exactly what I am talking about.
This is the only picture I got of all the adults there.  I wanted to show off my incredibly shrinking husband.. I'm so proud of him!

Next year, this little sassafrass will be on stage too!  She is such a great dancer at only three.  Owen also loves to watch the mini bots do their hip hop moves and I'm pretty sure he'll be joining them after he gets his new heart!
After the girls danced and got changed, we headed over for festival treats and some fun! Owen's first pick was a blow up train which turned out to be a 'train wreck'.. he hated it. Then we went with the "Berry Go Round"... appropriately named.
We all waited in line forever for the kids to do the bungee trampolines.  It was so worth it because they all had a great time!  Lucy was up first. 
Gigi was full on flipping the entire time.
Kam just bounced as high as she could.
Liv was a rockstar and the volunteer would bounce her super high, followed by her squeals of delight.

Owen wanted to do it, then he didn't, then he did again. He was so brave to get on the tramp and he loved it! He didn't get much air, but he kept saying.. "this is SO Aweeesssooommmeee".  Look at those tiny legs.

After a few slides and more bounce castle time, we headed to the hamster wheels before calling it a night. I don't know what these big giant blow up things are. I swore that I wouldn't let Owen in one for two reasons. One, it's a total germ pit in a bubble and second, because he was going to get tossed around. Kam went first.
Then Liv went next.
Gigi just flipped around in there the entire time.
And then Owen took his turn after Lucy.  We were so nervous, but he had such a great time!  He mostly butt scooted while the volunteer pushed him back and forth.  He loved it.

Afterwards, the kids got to pick out a toy and then we called it a night!

We will be back next year because it was so much fun!  The kids had a great time!  We were starving for real food, so we headed to Sauce for a little dinner on the patio.  The weather was so amazing, not cold, not hot, just perfect!  We used a whole bottle of hand sanitizer between us all, washed our hands and I made the kids bath as soon as we got home.  We are so excited for Halloween this week, but first up, pumpkin carving.