It's Superbowl Sunday! I don't usually watch but one football game a year, today is the day. Owen and Carson are in heaven. Owen keeps saying "football" over and over again. He's an addict. It just so happens this pint size player also loves hot italian cheese dip. He couldn't get enough! We'll see if the hot wings get the same response. Kamryn, on the other hand, is busy reading in her room and wants nothing to do with the Superbowl experience. She pops downstairs everyonce in a while and says "what smells good?" Ha. I love that girl!
After a quick trip to urgent care this morning, I was diagnosed with Brochitis. I'm on Zpac and taking mucinex in hopes to kick this cough by Thursday. Meanwhile, I'm santizing like crazy and being SO careful around Owen.
We are scheduled to board a plane to Stanford on Tuesday afternoon. Everything has fallen into place perfectly as we plan our trip. You know I have clorox wipes, hand sanitizer and face masks ready to go on the plane!
After rescheduling twice, due to illness, we have family pictures tomorrow afternoon. We're even letting Kamryn ditch school tomorrow to spend one last day with us before we leave. We're cool parents like that. :)
Sunday, February 6, 2011
Thursday, February 3, 2011
I Wish...
I wish to be... I wish to go... I wish to meet...
Owen has been approved for a wish through the Make-A-Wish foundation!! No parent wants their child to have a life-threatening illness, but it's organizations like this one that bring alot of happiness into their journey. This year is going to be a challenging one for Owen. We will spend many days in the hospital, he will endure two open heart surgeries (at least) and he will probably have additional MRI's and at least 2 cardiac Cauterizations. I want him to have a little something amazing and exciting to look forward to at the end of it all. His wish to come true!
We don't want to influence his wish or decision in anyway. When I ask him what he would wish for.. he says "Meet Buzz Woody". We have at least another 4-6 weeks until the wish granters come out to meet Mister Owen and talk to him about his wish. He's going to love all the attention!
I love the little message they sent us in the welcome packet. "Let your child do the wishing. Children wish so beautifully -- all by themselves!" I agree. He may wish for a stuffed buzz doll, a trip to the magic kingdom, or a visit to the beach. It's all up to him.
Originally, I wanted to wait until he was older and could really appreciate this opportunity. Then I was smacked with the hard reality that, tomorrow is not guaranteed. We must live in the moment and that's what we will do!
I am so excited for Owen to have this opportunity and I can't wait to watch his wish come true!
Wednesday, February 2, 2011
Six Days
Six days.
I can't believe we will be boarding a plane for Stanford. I am not freaking out yet. I have been trying to prepare Owen for what lies ahead. He says "fix my heart" and "ouchies". Unfortunately, he understands what anesthesia is and how icky it makes him feel. He knows about the echos, chest xrays, constant blood pressure and o2 monitoring and says "it otay momma."
He is one amazing little boy!
I try to make the experience sound like an adventure. We're going to lie in bed and watch movies all day. He'll have his iPad and my laptop to play with anytime he wants. We're going to skype with Daddy and Kamryn each night. The nurses are going to give him unlimited popsicles and crushed ice. He can order off the menu like a big boy and eat french fries for every meal. Now that I think of it.. he's not going to want to come home.
Kamryn is scared for her brother and what he has to go through. Most of all.. she's scared he won't make it out of surgery. She's constantly asking me if things are going to be okay. Do I have a "good" feeling about this one. Other times she'll ask "are the surgeon's really, REALLY, good? Like the best in the world good?" It's heartbreaking to watch her worry about her brother. She loves him SO much and feels helpless. We've been doing our best to answer every question honestly and having long talks with her. Most of the time, just listening to her concerns, is all she wants. I can't imagine trying to comprehend the situation at 11. She's a tough cookie!
So.. six days.
A social worker from the hospital called yesterday to see if I needed assistance with any arrangements. She doesn't have any idea how OCD I am about this. I have everything reserved, scheduled, printed out and in a notebook. We just need to stay healthy.
In our efforts to stay healthy, the only thing exciting on the schedule between now and when we leave is family pictures on Saturday. I'm going stir crazy indoors, so we go for little drives throughout the day to Sonic, or to pick up sis from school.
I can't believe it's already February and am a little sad that Punxsutawney Phil didn't see his shadow. I'm so not ready for spring. In the desert, springtime means summer. Summer bring too much heat!
I can't believe we will be boarding a plane for Stanford. I am not freaking out yet. I have been trying to prepare Owen for what lies ahead. He says "fix my heart" and "ouchies". Unfortunately, he understands what anesthesia is and how icky it makes him feel. He knows about the echos, chest xrays, constant blood pressure and o2 monitoring and says "it otay momma."
He is one amazing little boy!
I try to make the experience sound like an adventure. We're going to lie in bed and watch movies all day. He'll have his iPad and my laptop to play with anytime he wants. We're going to skype with Daddy and Kamryn each night. The nurses are going to give him unlimited popsicles and crushed ice. He can order off the menu like a big boy and eat french fries for every meal. Now that I think of it.. he's not going to want to come home.
Kamryn is scared for her brother and what he has to go through. Most of all.. she's scared he won't make it out of surgery. She's constantly asking me if things are going to be okay. Do I have a "good" feeling about this one. Other times she'll ask "are the surgeon's really, REALLY, good? Like the best in the world good?" It's heartbreaking to watch her worry about her brother. She loves him SO much and feels helpless. We've been doing our best to answer every question honestly and having long talks with her. Most of the time, just listening to her concerns, is all she wants. I can't imagine trying to comprehend the situation at 11. She's a tough cookie!
So.. six days.
A social worker from the hospital called yesterday to see if I needed assistance with any arrangements. She doesn't have any idea how OCD I am about this. I have everything reserved, scheduled, printed out and in a notebook. We just need to stay healthy.
In our efforts to stay healthy, the only thing exciting on the schedule between now and when we leave is family pictures on Saturday. I'm going stir crazy indoors, so we go for little drives throughout the day to Sonic, or to pick up sis from school.
I can't believe it's already February and am a little sad that Punxsutawney Phil didn't see his shadow. I'm so not ready for spring. In the desert, springtime means summer. Summer bring too much heat!
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