Biopsy Day

Today has been very busy!  The day started at 4am when Owen woke me up to change his gtube.  It was loose and leaking a little and I guess it was time.  So after a gtube swap, we attempted to sleep a little longer.  Owen was NPO (no food or drink) at midnight, so you can imagine he was starving by 1pm when he finally went to the cath lab.  We had visitors before the cath that brought awesome tshirts and gift cards.  Thanks to all that donated, and thank you Eidennshink family for the visit!  

We headed to the PACU to prep for surgery.  Owen is totally comfortable with heading to the cath lab and it's not a big deal for him.  I put on my bunny suite and we took him back.  He asked for his mask to be flavored with 'fruit cocktail' and he went right to sleep.  He was in and out in an hour, which was speedy!  His pressures were amazing, but especially great considering he's only a week out.  Usually the heart is stiff for a few weeks following transplant and the right atrial pressures are elevated.  Owen's were pretty close to perfect!  They felt comfortable enough to remove his PICC line, which was cuffed into place and is causing him major soreness tonight.

We should get biopsy results tomorrow.

It's always great to chat with the ladies in the Ford Surgery waiting area.   They received a call when Owen was awake in recovery and the nurse wanted to know if I had his chips with me.  LOL.  He was ravenous after going 15 hours with no food and he has been feasting the rest of the afternoon.  

My dad is amazing and drove my Pilot up today from AZ and brought all the things we couldn't bring on the life flight last week.  He did a dinner run for Owen and got him his spicy wings.  Kip and Harrison stopped by for a visit and Owen got some good laughs in.  I'd say it was a great night!  

We are getting settled in for bed after a long day.  Feeling grateful for all we have.  Owen is doing phenomenal and is handling things like a champ.  He was HANGRY earlier when we got back to his room and nothing tasted good due to the anesthesia.  He was frustrated and lost it for a minute.  It's these moments that I realize how hard it is for him to suck it up all the time and be brave when he's just a 9yr old boy.  He is superhuman most of the time.