Friday, September 13, 2013

Family Album Project and Fun

We have had a busy couple of days with Kindergarten and therapies.  Owen is pushing himself so much in therapies.  Today he practiced cutting with scissors and did a better job that I normally do.  He learned to ride a bike, climbed stairs, walked through the hospital to school and back to the car, zipped his own jacket, climbed into his car seat and buckled the 5point harness.  The changes I see in him over the last two months since he got his heart are unreal... a miracle.. a blessing! 

We have weaned his steroids down to 50% of his original dose, so these cheeks will be deflating over the next six months.  They are adorable for now though. :)  Last night was The Family Album Project at the RMH.  Owen was first and he had such a great time.  Here are links to the other FAP photo shoots while we have been at he RMH... here... here... here.



Last night was followed up with an end of summer BBQ at the RMH, thanks to volunteers from Wells Fargo.  Cinderella also showed up to do face painting and balloon animals.  There was so much great energy, a lot of families were at the house having fun.. always a good time!

Owen's super muscle man Spiderman... and his Spidey face painting on his cheek. 
He has the longest eyelashes and we are both loving his moustache.  He is starting to get some hair on his back, but it's blonde and fuzzy.  After we wean the steroids down to a really low dose, we will talk about switching from anti-rejection meds to the one that doesn't cause hair growth in all the areas that little boys don't want hair.  It's a minor side effect considering the big picture though.
Today was art day in Kindergarten and Owen made this awesome bird!  He is not much of an artist and has never been interested before, but he looks forward to Friday art days.  There are only about 3 kindergartners at the hospital school and so they join the big kids for art projects.  He colored, traced and had a great time for the full hour he was there.  So impressed!! 
That's wraps up our week.  What are your weekend plans?  We are going to hang around Palo Alto, since we can't go far, and see what we can find.  There are a ton of hiking trails we haven't tried yet and I still want to explore Stanford campus.. it looks really pretty on the post cards and we are across the street.  :)

2 comments:

Tracy said...

He is so cute! I hope you have a relaxing day. Thank you for letting us follow your sweet boys journey. We continue to pray for you and Owen and your family.

Kerrigan said...

The new strides and accomplishments are totally amazing.Loving his chubby cheeks.
It truly is a miracle!!
Have a great week.