IVIG Fail.

As you can see from this picture, Owen was thrilled to be heading to PCH for his IVIG today.  Turns out he is a much happier boy as of right now, because the hospital screwed up and now we aren't going.  As if me calling at 9am, 11am, and 1:30 wasn't enough to confirm that we were looking for an estimated time of bed availability, I called at 3:30 and was sent to the CVICU charge nurse.  She said and I quote "we didn't know Owen was coming today."  So my three previous phone calls confirming he was on the schedule?  So frustrated. 

She then proceeded to tell me that the ICU docs said that it's best he come tomorrow.  Apparently they have beds, just not enough nurses.. "because we didn't know he was coming."  The on call cardio in the CVICU said even she didn't know Owen was on the schedule.  Ok.. so tomorrow?

"We will let you know sometime tomorrow if we will have bed availability."  Seriously?  I was super annoyed and frustrated seeing as my car was packed and I had a very irritable little guy all morning that was pretty much dreading and anticipating his trip to the hospital to get poked.  Not to mention that getting a heart kiddo like Owen packed up and ready to go to the hospital is not a small task with his oxygen, feeding supplies, meds, ect.

So we came home, unpacked and I called our transplant NP.  She apologized and called me back 30 min later and said that the issue was simply not having enough beds, but that they knew he was scheduled.  Ok.  Seriously?  So what's the story and who dropped the ball so we can correct it and not have it happen next tiem.  Sorry, I am just venting.  If it was an issue of bed availability, then you could have told me that during one of three calls to 'bed placement' in Admitting.  That was not the issue.  So I asked the same question.. "so tomorrow then?"  Same answer.. "we'll call you tomorrow and let you know." 

I get that the CVICU is unpredictable and things come up.  I get that there may be a short nursing staff, or limited bed availability.  I also get that mistakes happen.  What bothers me so much is that this is Owen's 8th IVIG treatment since August and we have had an issue every single time. 

Thanks for the midweek vent. :)  So tomorrow then.  We shall see.

Back to School!

Winter break is officially over and Kam has to go back to school tomorrow. We had a really relaxing break and stayed 100% healthy!!   Aside from Owen's incident with the stairs.  Good thing he has some sort of super human healing power because look how great it's healing after one week!!  He has full range of motion and the swelling is almost completely gone. 

I'm sure Kamryn is dreading her first day back to school.. I remember how tough it was after long breaks.  We finally got Sis' report card in the mail this week for her first semester of Jr High and she rocked it with a 4.2GPA!!  We are so proud of her!

This week is going to be a busy as we get back on schedule with therapies, dance and school.  Throw in Owen's IVIG on Wednesday and I am going to be wishing we could go back to our relaxing time off. 

I never posted about Kam's birthday, but she had a fun day!  She got a new iPad mini with a super cute chevron hot pink case.  We took her out to lunch at Cheesecake factory and she wanted a huge slice of their fudge cake for her candles.  It was simple, the way she likes things.  She opted out for a big party this year, so we are getting together with family next week to do a combo party for the two kiddos instead. 

Speaking of birthdays, Owen says a million times a day.. "Is my birthday still in 3 weeks?"  It sure is.

Happy top of the week to you all!

Happy 13th Birthday!!!

Happy 13th Birthday to the sweetest, most beautiful, kind, loving, intelligent, funny, helpful, talented girl we know!   I can't believe my baby girl is a teenager!!  Kamryn came into this world at 6:30 on the 3rd day of January. She had silver highlights in her hair and the cutest little face.  She was so long and just a tiny little thing.  She was our little millennium baby.  We were so young and we couldn't wait to start our lives as new parents.  Time sure has flown by, but when I stop to remember all the amazing times we've shared with her, it feels like a lifetime!  I just want to say Happy Birthday to our most wonderful daughter we could have ever asked for.  Love you Sis!!  To the moon and back a zillion times.  And since you just LOVE It when I sing.. Ha.. here it goes..

Happy Birthday to you...

Happy Birthday TO Yoooouuuu...

Happy Birthday Dear KAMRYN

Happy Birthday to YYYYOOOOUUUU!!!