Carson and Kamryn dropped us off at the hospital and Owen started with his echo, ekg and vitals. I have to say that he is amazing!! He helps the nurses get what they need, chills throughout the echo and lays as still so they get a pretty ekg. We waited an hour or so for Dr Rosenthal (cardiologist) to review everything and he said things look okay.
Me: "So, everything is GOOD?"
Dr R.: "Well, I wouldn't say GOOD, but he's stable."
I'll take stable!
My only concern was his dipping oxygen saturations (into the 50 range) when he is active, but turns out, it's not unheard of. His blood pressure was way too low to increase any medications right now, so we'll just keep everything as is.
His weight gain is GREAT... he's 28.5lbs. He is happy, playful and sustaining himself. The Fontan (the last surgery for HLHS) is still not an option.
We scheduled another visit for mid October for another Cardiac Cath. We'll continue to be followed closely with Dr Stock in Arizona for now. Whew. We continue on 7 medications, full time O2 and his blended diet. While it seems like we are at a standstill with his care, it's a blessing! We will slowly wean his Viagra (because no one knows why exactly he is on it) prior to his cath to see if we can get off that medication all together. FYI.. Viagra is for Pulmonary Hypertension, which Owen has never had. It was one of those meds we decided to try to see if it would help him wean off the oxygen. It didn't work.
We were almost done with our visit when we got the lab request. Bummer. We ran down to the lab and they pricked Owen twice with NO luck. I said "that's it!" and they can get the bloodwork during his cath in October. My heart was breaking.
After much screaming and a failed blood draw, we headed upstairs to ICU to meet our friends Summer and Mason! It was so great to finally meet them! I felt bad because the nurse had to wake them up when we got there. Mason wasn't feeling so hot, but I don't blame him one bit. Owen wasn't much like himself either. We'll have to get those sweet boys together OUT of the hospital and let them play. They have such similar stories and are two pretty tough boys.
We have another evening in this beautiful town and then we're making our way down the coast for a little beach fun! Until then... thank you for all your prayers!
8 comments:
I am so happy you got to meet Summer and Mason. Did you ever find Moriah and her mommy and daddy? They are all such great people.
I am sorry about the failed blood draw. His little veins just need a rest. I hope you have a very nice mini vacation and everyone feels better.
p.s Owen looks great, you are doing super job!
So the final word right now is play some more.. keep on keep'n on.. Wow, awesome. I am so curious, do they think with even more time to get strong and with his new diet and such that he could keep moving in a good direction. Or, is that so far away that they are not sure? I am also sorry about those pokes. I hope your mini vaca is a blast.
Yay for a successful visit...enjoy the rest of your stay! Our prayers are with you!
That's good to hear! Have a fun remainder of the trip!
Yay! Stable is good - we'll take stable!! Glad the appointment went well (apart from the blood tests - someone really needs to invent a better way of doing them!)
Owen's looking brilliant - and great news about his weight. Just goes to show that mum knows best when it comes to our little ones! x
Wow! What an awesome day! I seriously dread going to the doctor with my daughter. Terrible two's are in high gear then on top of that the whole spoiled heart baby issue = one little miss priss! Stable is GOOD and God is GREAT all the time :)
Glad you got a good 'stable' report. Hope you have fun on your vacation and have a safe trip back home!
We love good news! Stable is terrific. Enjoy the beach.
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