Crafts

I wish I had something fun to write about our weekend, but it was simple and productive. We have family pictures coming up next week, so we went shopping to get some new duds. Kam is so girly and loves scarves, rings, necklaces, you name it! I have never been like that, so it's fun to shop with her and see her get so excited about giant owl rings and fancy infinity scarves. She is a penny pincher, but I'm pretty sure what money she does spend, will be on accessories and clothes.

My girly splurge is my pedicures.  I turn on the massage chair and get lost in tabloid magazines and the next thing I know.. my toes look like peppermint candies! :)  I told her to surprise me and she sure did.. I love my candy toes!

I haven't started decorating for Christmas yet, because the hubs like Thanksgiving to be it's OWN holiday before we start decorating for Christmas.  So tradition is, Black Friday shopping for me, then Christmas decorating the rest of the day.  I made this cute glass block at Super Saturday last weekend.  Again, I am so not crafty, so I sign up for the crafts that are pre arranged and in little kits.

Again with my lack of craftiness.. I saw this sign on Pinterest and just HAD to have one!  Owen sings this song all the time and really it's quite fitting for our family.  I was going to order one, but it was crazy expensive, so I thought I'd make one.  But then again, who am I kidding.   I was on one of my Facebook consign groups last week and found this one for sale.  Now it's in our family room and it's the perfect reminder for me when I am stressed out.  I can't just read it, but I hear Owen singing it in his tiny little voice.. "Every little ting.. is donna be alright .. right.. right.. "  It makes me smile.

Now on to Owen's craft of the day.  Owen doesn't like doing crafts.  He doesn't like coloring, drawing, painting, or glueing... it's just not his thing.  So when Connie (Occupational Therapist), came by today with fruit loops and said "we're gonna make a craft", I cringed a little.  Owen was cooperative for the first three or four fruit loops.  Then he started with putting two green ones in his left hand and two red ones in his right hand and said.. "this is the lizardman, and this is Spiderman" then he clapped his hands together and said "they're fighting!!"  Connie is good about getting him back on track and he eventually finished his tree, with a little nagging.  He is proud of it hanging on the fridge and has me thinking we should probably get our craft on a little more. 

We are all so excited for Thanksgiving this week.  We are going to my parent's house and we do it up right!  There is always so much food that we all end up with leftovers for a week!  We have so much to be Thankful for! 

Home.

Owen had an uneventful IVIG treatment and we made it home about noon on Friday.  We took a LONG afternoon nap and it was so needed!  Owen hasn't had any side effects this time around and so we are thankful for that.  The only red flag I saw this time around was his crummy oxygen saturations that never rose above 76 on 2 liters of oxygen.  When he played in bed or got up and walked around, his sats continually dropped into the 50s.  I am hopeful that they will find some collaterals to coil off in the cath lab next month.  Collaterals are little pop offs that the body creates to try to "fix" the route of blood flow, but they take blood away from where it needs to be going.  I'm hoping a little intervention will improve his oxygen saturations, which will in turn, buy him more time until a heart becomes available.

Last night, the kids and I ran to the movie store and rented Home Alone.  It was a great way to kick start our holiday movie nights and Owen's belly laughing was priceless.  We had a great, relaxing, evening snuggled up in our big cozy bed!

Time to get ready for dance team pictures.  Life just keeps us moving along...

IVIG Round 5

Owen is back for his 5th round of IVIG.  We checked into the CVICU at 4pm and Owen was chatting up a storm.  He talked to his nurse non stop for the first hour and then wandered around his room, looked out the window and then finally settled into bed. The IV team stopped by at around 7 and we got his IV placed quickly.  We tried a new trick where we closed our eyes and counted backwards from 10 to 1 to take our mind off the poke.  It worked from 10.. 9.. 8.. and then the tears fell.  It didn't help that the IV wouldn't draw, so we had to poke his other hand to draw labs.  Our countdown didn't work the second time around.. just tears and cuddles. 

Our nurse was really busy with another patient and we hadn't eaten since lunch, so I unplugged his monitors and leads and we headed down to the cafeteria for dinner.  It was a nice break to get out of this room and it didn't appear that anyone missed us too much.  We came back to our room, just in time to meet our night nurse.  It's a guy that is pretty familiar with Superheros, so he is a big hit!

The Volunteers came by with Howard the dog to play with Owen.  Owen isn't much of an animal guy, but he likes these calm doggies that come around.  Howard cuddles Owen and fell asleep on his lap.  His owner woke him up in time to show Owen some cool tricks and Owen gave him some treats.  Owen was so excited to get a card with Howards information.  He collects the doggy cards and loves to look at them.

Owen takes forever to eat his dinner, but ate pretty good.  A few carrots, a celery stick, a couple bites of crunchy lettuce, a bite of chicken, a drink of milk and a chip.  We watched Lilo and Stitch and now he is sound asleep for the night {hopefully}.

We are still waiting for the pharmacy to bring up his IVIG and it's 9:30pm. His nurse has called a million times and so hopefully they will get it up here soon. I'm pretty sure it doesn't take 6 hours to mix up some immunoglobulin. Yikes. Here's to a decent nights sleep in a comfy recliner listening to the beeps of Owen's alarms. Prayers go out to our other heart families that are living in hospital rooms from Seattle, to SLC, to Boston. Hugs to you all.. you know who you are!!