Cardiac Cath... A Day Early.

Breathe. I need to keep reminding myself of this.

Owen's Cath was bumped up a day early.... tomorrow at 7am!!!

Breathe.

I have been going a mile-a-minute since Tuesday afternoon. Owen was thrilled to get on the "airpane!" It was easier than expected and security didn't ask for half of the doctor's notes that I was armed with. They were great!

Owen talked non stop on the flight!! I gave him a baby wipe and he cleaned the plane for at least 45 minutes. He climbed over the seats and then crashed for the last 15 minutes. We all had a smooth flight.

When we finally got to the hotel, I realized that I forget the Vitamix Blender. PANIC! That is how Owen gets 100% of his nutrtion. We ran to Target and bought a blender and tons of soft foods.

Uncle Rustyn (Carson's little bro) came down from San Fran to hang out with us for the night. Owen showed off ALL his skills and we went to the Creamery for comfort food. That's when I got the call from the NP from Stanford and she said we need to be at the hospital at 7am tomorrow.

They are going to do his echo, then clinic with Dr R. and then he'll go to pre-op and into the cath lab. Then we'll be staying the night at the hospital tomorrow. By Friday... we'll have answers.

Breathe.

Owen had SUCH a great day today. He was full of energy, playful, silly and it made me question why we were even here. Oh. But he is SO so blue. I am quickly reminded as to how sick he is. I am just amazed at how well he tolerates all of this.

Tomorrow will be a big day. I will post throughout the day and hopefully get lots of pictures uploaded. I'm off to bed. We have an early wake-up call.

Countdown...

It's going to be a long night. I am trying to pack light. I'm failing miserably. If I knew for sure we were coming home, it would be simple. Instead, I pack to stay and hope to not use half of it.

Owen has his portable oxygen concentrator, stroller, carseat, his big suitcase is stuffed, a suitcase full of medical supplies (feeding pump, Vitamix blender, syringes, feeding bags, formula), a backpack with "goodies" (diapers, books, movie player, dvds), and an ice chest full of medications and syringes of pre-blended food for the duration of the flight. Whew. That's a lot of stuff for one little boy.

I have one suitcase.

Carson has one, teeny tiny, carry on. How do guys do that??

Kamryn has her bags packed for a week full of a fun with her cousins.

I can't get the song out of my head... "We're leaving on a Jet Plane, don't know when I'll be back again........"

I hope it will be Saturday. Time will tell. We'll update tomorrow night with pictures from Owen's first airplane ride.

Wrapping up the week

This week has been more than stressful and I can't wait for the weekend to begin. It all started with the branch manager at Apria calling to tell us our insurance was no longer in contract with them and so we need to switch all of Owen's oxygen and enteral supplies elsewhere. I spent hours upon hours on the phone, getting doctors to write scripts, making numerous phone calls to Owen's two insurance companies, and getting nowhere. I screamed a few cuss words on several occasions.

Today, I got in touch with the insurance billing representative at Apria and they told me the branch manager was wrong all along and there were no issues with Owen's primary or secondary insurance paying them. My head turned all hot and I thought I was going to explode!! I went down to the branch to speak with the branch manager in person and he was "not available." Convenient. It's probably a good thing, I was fuming and I would have said a few choice words I would have regretted. I am cooled off now and I will confront him on Tuesday. Or attempt to.

I got all the of Owen's formula, pumps, tubing and gtube supplies switched over and picked up today. So that will remain with the new company. Apria's loss.

This is Owen's new grouchy face... he can't hold it for more than 10 seconds when he starts laughing.
We leave for Stanford in five days and I feel like I am finally able to get my house clean, get Kamryn squared away to stay home, and cover all my bases to take his many supplies on the plane with us. I'm actually looking forward to a little getaway from home... although I wish it was under better circumstances.

Owen has been feeling okay. He's still blue when he plays, but massive amounts of oxygen blowing up his nose is keeping him stable. He is excited to ride on an airplane next week and every time he sees a plane, he makes sure to point it out to us. He has also been spending more time on his feet. Walking is going to be slow go, but he is getting braver and stronger every day.
The best news of the day.... Kamryn got a 100% on her first math test in ALP! She skipped a year in math this year, so she never learned 5th grade math. It's AMAZING that she got 100% and we are so proud of her!!

We have a fun weekend ahead of us... cousins, birthday parties, waterpark fun, and lots of cleaning. I hope ya'll have a great LONG weekend!!